February 10, 2013
Patient Privacy Rights, joined by EPIC, ACLU, Center for Democracy & Technology, EFF and 24 other consumer privacy and public interest organizations asked the White House’s Office of Science and Technology Policy to issue a Request for Information in order to conduct a review that incorporates the concerns and opinions of those whose data may be collected in bulk as a result of their engagement with technology.
“We believe that the public policy considerations arising from big data and privacy are issues of national concerns that ‘require the attention at the highest levels of Government.’”
The Coalition for Patient Privacy believes that the “OSTP should consider a broad range of big data privacy issues, including but not limited to:
(1) What potential harms arise from big data collection and how are these risks currently addressed?
(2) What are the legal frameworks currently governing big data, and are they adequate?
(3) How could companies and government agencies be more transparent in the use of big data, for example, by publishing algorithms?
(4) What technical measures could promote the benefits of big data while minimizing the privacy risks?
(5) What experience have other countries had trying to address the challenges of big data?
(6) What future trends concerning big data could inform the current debate?”
For more information, see EPIC, Coalition Urge White House to Listen to Public on “Big Data and Privacy”
To view a copy of the letter, please visit Petition for OSTP to Conduct Public Comment Process on Big Data and the Future of Privacy