About HIPAA Summit Media Contact DONATE


Who has data about your mind and body?

Technology and the Internet have made sure you have little control over data being collected about your mind and body. This data is collected and used by governments and thousands of businesses for purposes you may never have agreed to.

Our mission is to help individuals realize their fundamental human right to privacy through personal control of health information wherever such information is collected and used.

How does open health data impact children and young adults?

With so many means of sharing and collecting health information, we need to give our kids the tools to make informed choices about what they are willing to share, and what they want kept private.

Learn More

Learn about our work and perspectives on privacy news and technology

Projects Technology

Learn More

Together we will restore your power to determine who can
access information about your body and mind