About HIPAA Summit Media Contact DONATE




Founder & President – Dr. Deborah Peel

E-mail: dpeelmd[at]patientprivacyrights[dot]org

Phone: (512) 820-6415

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Our Mission

Our purpose is to honor and empower the individual’s right to privacy through personal control of health information wherever such information is collected and used. We educate, collaborate and partner with people to ensure privacy in law, policy, technology, and maximize the benefits from the use of personal health information with consent.




  • theDataMap – Data Privacy Lab, Harvard University
  • O’Neill Institute – Georgetown University Law Center
  • United Nations Special Rapporteur for the right to privacy

Our Work

  • International Summit on the Future of Health Privacy
  • Privacy Trust Framework
  • theDataMap
  • Advocacy
  • Legislation
  • Education