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Privacy Policy

The Basics:

• We do not sell, rent, or lease your email address or any personal information. EVER.
• We do not — and will not — share or disclose your email address or any personal information unless it’s with your permission.
• You control what kinds of information (i.e. e-mails) you receive from us.
• We do not collect data.
• If you donate online, we use SSL encryption (the standard, secure link).
• If you click on a link to another website, read their privacy policies.
• If you submit a petition, complete any forms or send any information to us via “Share your story” or “Contact us,” only an authorized employee can access that information with a special password. This is a much more secure process than directly e-mailing that information to us.

The Details:

PPR continues its commitment to protecting email addresses and other personal information we receive.  We will never sell, rent, or lease email addresses or any personal information. However, in light of recent events, PPR (like other organizations) recognizes that there are, and could be, information-accessing activities about which it is unaware and over which it has no control.  PPR will continue to use processes and procedures so that PPR is not sharing or disclosing email addresses and other personal information without your permission.

Email Subscriptions

In order to receive information about services, updates on health privacy, and legislative action you must opt-in to our e-mail list. We will not automatically send you information without your consent. Only your e-mail address is required. We do not use web beacons or other email tracking technologies to determine whether you received, opened or read our emails.

As a 501c3 nonprofit organization we rely on the support of individuals. We have fundraising drives every few months to support the services we provide. You may opt-out of these fundraising e-mails and continue to receive other e-mail that you are interested in.

You may opt out of any kind of e-mails or all e-mails entirely. (Note: if you make a donation or send a letter to a decision maker, you will receive a confirmation e-mail but are not automatically put in our e-mail group.) Most e-mails also include a link to unsubscribe out of e-mail at the bottom of the message or e-mail us directly.

If you use the Tell-A-Friend option to share our website or an e-mail with someone, we do not collect that friend’s name or e-mail address. The friend must opt-in to receive information from us.

We Do Not Collect Data

We do not use cookies or “remember me” features. This means you have to personally enter any of your information every time. We do not use “session based” or Temporary Cookies on our site.

We only use or analyze IP addresses or web logs to protect our web site again malicious attacks and keep it secure. Permanent web log activity is protected using secure data procedures accessible only by password protected entry.

Security for Donations

All information provided when donating online to Patient Privacy Rights is transmitted using SSL (Secure Socket Layer) encryption. SSL is a proven coding system that lets your browser automatically encrypt, or scramble, data before you send it to us. We do not store credit card information or social security numbers.

Other Web Sites

Our Site contains links to other Web sites. Please note that when you click on one of these links, you are entering another Web site for which Patient Privacy Rights has no responsibility. We encourage you to read the privacy statements on all such sites as their policies may be different than ours.

Information you send to us

All of our surveys, petitions and forms you might fill out on our site are security protected. Information communicated in these forms is accessible only by password protected entry.

Please only use these forms to communicate any sensitive health information, such as questions, comments or information pertaining to health related issues. We encourage you to ensure that any time you provide health information in an online environment that you are doing so in a secure system.

Our previous Privacy Policy is available to Download our Privacy as a PDF. We have changed our website to ensure there are no cookies, web beacons or other tracking technologies aside from the inherent web logs used to keep the site secure. If you find any evidence of trackers on our site, please email us at itsupport@patientprivacyrights.org

With additional questions regarding our Privacy Policy, please email privacy@patientprivacyrights.org

Updated April 4, 2017 to reflect our best efforts to remove all web beacons, cookies and other tracking technologies from our web site.
Updated April 9, 2018 to fix two typos: 501(C)3 to 501c3 and change to changed.