Should anyone other than you control your personal health information in electronic health systems? Across the board, Americans resoundingly say “NO.”
Patient Privacy Rights worked with Zogby International to conduct an online survey of over 2000 adults to identify their views on privacy, access to health information, and health information technology (health IT). The results were overwhelmingly in favor of individual choice and control over personal health information.
Healthcare IT News: Poll: Huge majorities want control over health info
Forbes: Americans Want to Control Their Health Information
Fierce Health IT: Majority of Americans want personal control of health information
Modern Healthcare: Privacy desires ignored
Americans are not just concerned about corporations snooping in their medicine cabinets, but also about researchers, nosy employees, and people with malicious intent, such as an ex-spouse or abusive partner.
Over ninety percent of Americans want to be able to decide which individual people can see and use their health information. This reflects a strong desire for very specific, detailed control.
Note: A sampling of Zogby International’s online panel, which is representative of the adult population of the US, was invited to participate. Slight weights were added to region, party, age, race, religion, gender,
education to more accurately reflect the population. The margin of error is +/- 2.2 percentage points.