Framework Outlines Key Principles for Protecting Privacy of Patient Data

To view the full article, please visit Framework Outlines Key Principles for Protecting Privacy of Patient Data.

iHealthBeat released an article about the Privacy Rights framework explaining its goals and principles.

Key quote from the article:

“The framework aims to help health care organizations measure how well their IT systems and research projects meet certain best practices for protecting patient privacy.

Patient Privacy Rights eventually intends to develop a system to license organizations based on their privacy policies and practices.”

The full Privacy Trust Framework can be viewed here.

New Framework Details 15 Core Health Privacy Principles

To view the full article, please visit New Framework Details 15 Core Health Privacy Principles.

HealthDataManagement.com recently posted this article about Patient Privacy Rights’ Privacy Trust Framework. The article tells HealthDataManagement readers “The Framework is designed to help measure and test whether health information systems and research projects comply with best privacy practices in such areas as whether patients have control over their protected health information, an organization obtains meaningful consent before disclosing data and obtains new consent before secondary data use occurs, patients have the ability to selectively share data, and the organization uses servers housed in the United States, among other factors.”

The key principles for our Privacy Trust Framework:

*Patients can easily find, review and understand the privacy policy.

* The privacy policy fully discloses how personal health information will and will not be used by the organization. Patients’ information is never shared or sold without patients’ explicit permission.

* Patients decide if they want to participate.

* Patients are clearly warned before any outside organization that does not fully comply with the privacy policy can access their information.

* Patients decide and actively indicate if they want to be profiled, tracked or targeted.

* Patients decide how and if their sensitive information is shared.

* Patients are able to change any information that they input themselves.

* Patients decide who can access their information.

* Patients with disabilities are able to manage their information while maintaining privacy.

* Patients can easily find out who has accessed or used their information.

* Patients are notified promptly if their information is lost, stolen or improperly accessed.

* Patients can easily report concerns and get answers.

* Patients can expect the organization to punish any employee or contractor that misuses patient information.

* Patients can expect their data to be secure.

* Patients can expect to receive a copy of all disclosures of their information.

The full framework can be viewed at Privacy Rights Framework.

Dr. Peel at Authors’ Roundtable at HIMSS 2013

Dr. Deborah Peel, PPR Founder & Chair, will join her co-authors to talk about pressing privacy issues raised in HIMSS’s just released book, Information Privacy in the Evolving Healthcare Environment. As a co-author, Dr. Peel’s contributing chapter discusses patients’ rights to privacy and consent and outlines the auditable criteria of PPR’s Trust Framework, which includes 15 clear principles to ensure meaningful consent within all electronic systems.

Purchase the book here.

Restoring patient control over PHI will be a key topic discussed, with additional focus on the technologies and laws needed to address the gaps and flaws in the Omnibus Privacy Rule.

Date: Tuesday, March 5, 2013
Time: 11:00 AM CT
Where:
HIMSS 2013 Annual Conference and Exhibition
Room 213
New Orleans Ernest N. Morial Convention Center
900 Convention Center Boulevard
New Orleans, Louisiana

An advocate for patients’ rights to health privacy since 2004, when she formed PPR, Dr. Peel has led the charge for more stringent data privacy and security protections, as well as tough new enforcement and penalties for violations that were included in the January 2013 release of the Omnibus Privacy Rule.