Top Experts Discuss Privacy Risks at 2nd International Summit on the Future of Health Privacy

Patient Privacy Rights and Georgetown University Law Center’s O’Neill Institute for National and Global Health Law Host Event

Psychiatry Patient’s Story Highlights Growing Threat to Privacy

WASHINGTON–(BUSINESS WIRE)– When a lawyer named “Julie” sought psychiatric treatment in Boston, she never imagined that the notes of sessions with her therapist would be digitized and made available to thousands of doctors and nurses—even dermatologists and podiatrists with no conceivable need for such private records. But that is precisely what happened. “Personal details that took me years to disclose during therapy are being shared throughout my medical network, against my will,” Julie says. “It’s destroyed my trust with my doctors.”

Julie will tell her story for the first time at the 2nd International Summit on the Future of Health Privacy, to be held in Washington, DC, on June 6-7. Sponsored by Patient Privacy Rights, the nation’s leading health privacy watchdog, and Georgetown University Law Center’s O’Neill Institute for National and Global Health Law, the Summit will explore the often-alarming privacy implications of the nation’s race to digitize patient medical records.

“Every state requires patient permission before sensitive mental health records can be shared with other doctors. But Julie found that hundreds of pages of intimate records, some detailing her abuse as a child, were open to the entire staff of her Boston-based healthcare system,” says Dr. Deborah Peel, founder of Patient Privacy Rights. “Julie is an example of how major electronic health records systems can actually strip patients of their privacy rights. Her tragic story highlights the need for the Privacy Summit—to shine light on these abuses and find solutions to protect patient privacy.”

40 Health-Privacy Experts Drive Debate:

More than 40 health-privacy experts from around the globe will gather for the Summit, including top U.S. government officials and leading CEOs, physicians and academics, along with several hundred live and virtual attendees. Speakers will discuss new policies including a Health Privacy Bill of Rights, data exchanges, secondary uses of health data and social media platforms that threaten patient privacy. In addition, the founder of Harvard’s Data Privacy Lab will announce the launch of a yearlong project, the first of its kind, to map the hundreds of secret organizations and agencies where private medical data is sold and shared in the United States.

Summit organizers also will announce the “The Best Privacy Technologies of 2012,” and companies will demonstrate new products that enhance patient control of personal health data.

Louis D. Brandeis Privacy Award:

To kick off the Summit, Patient Privacy Rights will honor the first-ever recipients of the Louis D. Brandeis Privacy Award. The privacy watchdog group will recognize Congressman Joe Barton (R-TX) and Congressman Ed Markey (D-MA) for their roles as leading congressional privacy advocates. And Alan Westin, Columbia University’s Emeritus Professor of Public Law and Government, and Ross Anderson, the University of Cambridge’s Professor in Security Engineering, will be honored for their groundbreaking work on consumer data privacy and security.

WHAT: The 2nd International Summit on the Future of Health Privacy
WHEN: June 6-7th, 2012
WHERE: Georgetown University Law Center
600 New Jersey Avenue, NW. Hart Auditorium, McDonough Hall
Washington, DC 20001

REGISTRATION: http://www.healthprivacysummit.org/d/3cq92g/4W

AGENDA: http://www.healthprivacysummit.org/d/3cq92g/6X

SPEAKERS: http://www.healthprivacysummit.org/d/3cq92g/6K

FOLLOW US ON TWITTER: @PrivacySummit

SPONSORS/PARTNERS: Accenture, CA Technologies, Dell, e-MDs, FairWarning®, Harvard Data Privacy Lab, IDExperts, Jericho Systems, Microsoft, PwC, RTI International, Telemedicine and Advanced Technology Research Center (TATRC), The O’Neill Institute at Georgetown Law Center, The University of Cambridge Computer Laboratory, The University of Texas School of Information

ABOUT PATIENT PRIVACY RIGHTS: Patient Privacy Rights is the nation’s leading bipartisan health privacy organization and leading consumer voice for building ethical, trustworthy healthcare IT systems. For more information, visit http://patientprivacyrights.org

Contact:
Keith Blackman, 202-730-5753
keith@blackmanmediasolutions.com
or
Jim Popkin, 202-686-6699
jim.popkin@sevenoaksmedia.com

Featured Participants in 2012 DC Health Privacy Summit Announced

March 21, 2012

FOR IMMEDIATE RELEASE

Contact:
Deborah C. Peel, MD
media@healthprivacysummit.org
(512)732-0033

Featured Participants for 2012 Health Privacy
Summit at Georgetown University Announced
Rep. Joe Barton, R-Texas, to Receive Honor;
Farzad Mostashari, MD, ScM, to Deliver Opening Keynote;
Ross Anderson, PhD, FRS, Delivers Evening Keynote

Austin, TX – March 20, 2012 – Organizers today announced a noted honoreeand two outstanding keynote speakers to be featured at the Second International Summit on the Future of Health Privacy, planned for June6th-7th, 2012, at the Georgetown University Law Center in Washington,D.C.

U.S. Congressman Joe Barton will be honored as a “Privacy Hero” during the 2012 Summit’s “Celebration of Privacy” on the evening of June 6. The award recognizes Rep. Barton’s critical role as a top Congressional privacy advocate beginning with co-founding the Congressional Bipartisan Privacy Caucus with Rep. Edward Markey in 2000. His leadership ensured House support for the historic new consumer privacy and security protections in the Health Information Technology for Economic and Clinical Health (HITECH) Act.

The opening keynote will be presented by Farzad Mostashari, MD, ScM, the National Coordinator for Health Information Technology at the U.S. Department of Health and Human Services. In addition, Ross Anderson, PhD, FRS, of the University of Cambridge, U.K., will deliver the evening keynote speech.

The 2012 Summit is hosted by Patient Privacy Rights and Georgetown University’s O’Neill Institute on Global and Health Law to provide an international venue for serious discussion by experts and thought leaders on timely privacy issues. Participants will consider how patients’ privacy and civil rights are impacted by current law and regulations, health technologies and architectures (including mHealth and ‘clouds’), data exchange, secondary uses of health data, and social media platforms. The theme addressed at this year’s Summit will be: Is There an American Health Privacy Crisis?

Summit sessions will also explore health privacy through the lens of U.S. and international policies about health information privacy, such as the recent Consumer Bill of Privacy Rights and the EU Draft Regulation on the Protection of Individuals with Regard to the Processing of Personal Data and on the Free Movement of Such Data.

More About U.S. Representative Joe Barton, R-Texas
Rep. Joe Barton, a 28-year veteran member of the U.S. Congress and Chairman Emeritus of the U.S. House of Representatives’ Energy and Commerce Committee, will receive a “Privacy Hero” award at the 2012 Summit.

The award recognizes Rep. Barton’s critical role as a top Congressional privacy advocate beginning with co-founding the Congressional Bipartisan Privacy Caucus with Rep. Edward Markey in 2000. His award is for his leadership in 2009, which ensured House support for the historic new consumer privacy and security protections in the Health Information Technology for Economic and Clinical Health (HITECH) Act.

More About Farzad Mostashari, MD, ScM
As National Coordinator for Health Information Technology at the U.S. Department of Health and Human Services, Farzad Mostashari, MD, ScM, is charged with promoting the development of a secure and interoperable nationwide health information technology infrastructure.

Dr. Mostashari’s position was mandated through the Health Information Technology for Economic and Clinical Health (HITECH) Act of 2009 and is focused on improving healthcare and clinical research, reducing its cost, and protecting patient health information. Previously, Dr. Mostashari held leadership positions at the New York City Department of Health, including establishing their Bureau of Epidemiology Services, and helped pioneer real-time electronic disease surveillance systems.

More About Ross Anderson PhD, FRS
Ross Anderson PhD, FRS, is a professor of security engineering at the University of Cambridge Computer Laboratory in the United Kingdom. Dr. Anderson is a researcher, writer, industry consultant, and expert in “building systems to remain dependable in the face of malice, error or mischance.”

More About the 2012 Summit Partners
Organizations partnering with Patient Privacy Rights to present the 2012 Health Privacy Summit include:

Registration for the 2012 Summit is free, but space is limited. Register now at http://www.healthprivacysummit.org. Last year’s First International Summit on the Future of Health Privacy successfully established a global public forum on the future of health privacy. Panel members included health privacy experts from academia, industry, technology, consumer advocacy, top government officials, and international experts. Learn more about the 2011 Summit here. Videos are available.

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O’Neill Institute for National and Global Health Law
The O’Neill Institute for National and Global Health Law at Georgetown University was established in 2007 to respond to the need for innovative solutions to the most pressing national and international health concerns. For more information, visit http://www.law.georgetown.edu/oneillinstitute/about/index.html.

Patient Privacy Rights
Patient Privacy Rights is the nation’s leading bipartisan health privacy organization and leading consumer voice for building ethical, trustworthy healthcare IT systems. For more information, visit http://patientprivacyrights.org.