Here’s a great article written by PPR’s Chief Technical Officer, Dr. Adrian Gropper about “why hip replacement surgery costs 5-10 times as much in the US as in Belgium even though it’s the same implant… JAMA publish[ing] research and a superb editorial on the Views of US Physicians About Controlling Health Care Costs and CMS put[ting] out a request for public comment on whether physicians’ Medicare pay should be made public.”
While the healthcare industry has made advancements in how they protect our most personal information, those trying to steal our electronic health records have become even more savvy as to how to access them.
Key Quotes from the Article:
“One of the biggest changes during the past decade is the data being targeted. Ten years ago, it was personal identifiable information. Now, said Rick Kam, president and co-founder of ID Experts in Portland, Ore., personal health information is being targeted, mainly because of the value it holds and the relative ease thieves have getting their hands on it.”
“94% of health care organizations have had at least one breach in the previous two years.Because data can now reside in multiple locations, including unsecured smartphones, laptops and tablets, and can be transported to an infinite number of locations, thieves, whether they be outside hackers, device stealers or people who try to use staff to share sensitive information, have more areas to target.”
To view the full article, please visit States Review Rules After Patients Identified via Health Records.
Key Quotes from the Article:
- -“Some U.S. states are reviewing their policies around the collection and sale of health information to ensure that some patients can’t be identified in publicly available databases of hospital records.”
- -Bloomberg News, working with Harvard University professor Latanya Sweeney, reported on June 4 that some patients of Washington hospitals could be identified by name and have their conditions and procedures exposed when a database sold by the state for $50 is combined with news articles and other public information.
- -The state probes are focused on whether privacy standards for health information should be tightened as data-mining technologies get more sophisticated and U.S. President Barack Obama’s health-care overhaul drives rapid growth in the amount of patient data being generated and shared.
- -Sweeney’s goal of identifying patients is to show that threats to privacy exist in datasets that are widely distributed and fall outside HIPAA’s regulations.
“According to a recent Black Book Market Research user surveys, the demands of EHR usability can no longer be ignored. 100% of nearly 2,900 practices engaged in the poll report they are employing much stricter selectivity in the replacement market wave and driving more informed decisions as they prepare to swap out original EHR systems.”
To view the full release: Usability Failures Heat Up EHR Replacement Market, Black Book Rankings Survey
The value of personal health information is very high inside and outside of the US healthcare system. At the same time, the US healthcare industry as a whole does a terrible job of protecting health data security. Most health data holders (hospitals and insurers) put health data security protection dead last on the list for tech upgrades.
Besides the lack of effective, comprehensive data security protections, thousands of low-level employees can snoop in millions of people’s health records in every US hospital using electronic records.
- -The latest celebrity example is the Kardashian hospital data breach firings: http://www.huffingtonpost.com/2013/07/14/workers-fired-kim-kardashian_n_3592841.html
The public expects that only their doctors and staff who are part of their treatment team can access their sensitive health records, but that’s wrong. Any staff members of a hospital or employees of a health IT company who are your neighbors, relatives, or stalkers/abusers can easily snoop in your records.
In Austin, TX the two major city hospital chains each allow thousands of doctors and nurses access to millions of patient records.
All this will get much worse when every state requires our health data to be “exchanged” with thousands more strangers. The new state health information exchanges (HIEs) will make data theft, sale, and exposure exponentially worse.
Tell every law maker you know: all HIEs should be REQUIRED by law to ask you to agree or OPT-IN before your health data can be shared or disclosed.
- -many states do not allow you to ‘opt-out’ of HIE data sharing
- -most states do not allow you to prevent even very sensitive health data (like psychiatric records) from being exchanged
There is no way to trust electronic health systems or HIEs unless our rights to control who can see and use our electronic health data are restored.
This insightful piece highlights the drastic violations of our current healthcare system in relation to the recent NSA breach.
Key quote from the article:
“What I have a hard time understanding, however, is how one can get worked up into a near panic about an overreaching national security apparatus while also celebrating other government expansions into our lives, chief among them the hydrahead leviathan of the Affordable Care Act (aka ObamaCare). The 2009 stimulus created a health database that will store all your health records. The Federal Data Services Hub will record everything bureaucrats deem useful, from your incarceration record and immigration status to whether or not you had an abortion or were treated for depression or erectile dysfunction.”
To view the full article, please visit My Routine – Mark Rothstein, Law Professor.
This is a very interesting article about Mark Rothstein’s opinion of current governmental actions involving privacy law. Rothstein asserts, “We live in an age in which consent should not be mistaken for choice. We click through consent on software without even reading it. Even if we technically consented, I doubt very much whether the average person would say, ‘Oh sure, it’s OK for my phone company to accumulate all this data about me.'”
In the interview, Rothstein also comments on the views of Louis D. Brandeis, saying “He felt that the government set the tone for society. If the government doesn’t value privacy and invades people’s privacy, then everybody will do that. He also thought it was very important that government activities be subject to review by the political process and the people.”
To view the full article, please visit What is Snowden’s Impact on Health IT?
This is a highly interesting article about the effect of Edward Snowden’s actions on health IT. In the interview with PPR’s own Dr. Deborah Peel, the issues of privacy that our government is currently facing can also be applied to the healthcare industry. As Dr. Peel aptly states, “The Department of Health and Human Services claims its actions are justified to lower healthcare costs. These are obviously very different agencies collecting different kinds of very sensitive personal information, but both set up hidden, extremely intrusive surveillance systems that violate privacy rights and destroy trust in government.”
A key argument that Dr. Peel makes is “The benefits of technology can be reaped in all sectors of our economy without the harms if we restore/update our laws to assure privacy of personally identifiable information in electronic systems. Our ethics, principles, and fundamental rights should be applied to the uses of technology.”
This article expounds upon the implications of Edward Snowden’s actions for the Health IT industry.
Deborah Peel, MD, founder of Patient Privacy Rights, says there are many parallels between the Snowden controversy and the U.S. healthcare system.
According to Peel, the NSA has one million people with top security clearance to 300 million people’s data. The U.S. healthcare system has hundreds of millions of people — none with top security clearances, and the majority with inadequate basic training in security or privacy — who can access millions of patients’ most sensitive health records. Further, we don’t know how many millions of employees of BAs, subcontractors, vendors and government agencies have access to the nation’s health data, she added.
“Corporations and their employees that steal or sell Americans’ health data for ‘research’ or ‘public health’ uses or for ‘data analytics’ without patients’ consent or knowledge are rewarded with millions in profits; they don’t have to flee the country to avoid jail or charges of espionage,” she said.
“The NSA justifies its actions using the war on terror,” Peel added. “The Department of Health and Human Services claims its actions are justified to lower healthcare costs. These are obviously very different agencies collecting different kinds of very sensitive personal information, but both set up hidden, extremely intrusive surveillance systems that violate privacy rights and destroy trust in government.”
“The benefits of technology can be reaped in all sectors of our economy without the harms if we restore/update our laws to assure privacy of personally identifiable information in electronic systems. Our ethics, principles, and fundamental rights should be applied to the uses of technology,” Peel says.
To view the full article, please visit Experts tout Blue Button as enabling information exchange between medical provider and patient.
Blue Button Plus (BB+) and direct secure email technologies could put patients in control of all use and disclosure of their electronic health records. BB+ lets us ‘view, download, and transmit’ our own health data to physicians, researchers, or anyone we choose.
But state Health Information Exchanges (HIEs) don’t allow patients to control the disclosure of personal health data. Some state HIEs don’t even ask consent; the HIE collects and shares everyone’s health records and no one can opt-out. Most state HIEs ask patients to grant thousands of strangers—employees of hospitals, doctors, pharmacies, labs, data clearinghouses, and health insurers—complete access to their electronic health records.
When corporations, government, and HIEs prevent patients from controlling who sees personal health data– from prescriptions, to DNA, to diagnoses– millions of people every year avoid or delay treatment, or hide information.
HIEs that open the door to even more hidden uses of health data will drive even more patients to avoid treatment, rather than share information that won’t be private.
Health IT systems that harm millions/year must be fixed. Technology can put us in control of our data, achieve the benefits and innovations we expect, and prevent harms. We have to change US law to require technologies that put patients in control of their electronic health records.