Introduction
8:30 - 8:40
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Welcome
- Robert L. Hutchings, Dean of the Lyndon B. Johnson School of Public Affairs at The University of Texas at Austin
- Deborah C. Peel, Patient Privacy Rights
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Session 1
8:45 - 9:10
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How the American Public Views Patient Privacy and Health Technology Systems: What Ten Years of Surveys Tell Us
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Session 2
9:15 - 10:10
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Contrasting Beliefs about Privacy Protection in the Digital Era
- Moderator: Anita Allen, University of Pennsylvania Law School
- Panel: Ross Anderson, University of Cambridge; Nancy Barto, Arizona State Senate; Corinne Carey, NYCLU; Lisa Gallagher, HIMSS; Helen Nissenbaum, New York University; Jim Pyles, Powers, Pyles, Sutter & Verville; Jessica Rich, FTC Bureau of Consumer Protection
- Rapporteur: Andy Oram, O'Reilly Media
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20 minute coffee break 10:15 - 10:35
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Session 3
10:40-12:50
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Case Studies: Finding Solutions for three urgent privacy issues
1. Consent and segmentation of data - 2010 PCAST report
- Moderator: Carl Gunter, University of Illinois
- Panel: H. Westley Clark, SAMHSA; Duane Decouteau, Jericho Systems Corporation; Stephen Palmer,Office of e-Health Coordination at Texas Health and Human Services Commission; Stephanie Perrin, University of Toronto; Wes Rishel, Gartner; Lee Tien, Electronic Frontier Foundation
- Rapporteur: Andrew Blumberg, University of Texas at Austin
2. Control of patient data - Health Information Exchanges
- Moderator: Barry Chaiken, former chairman HIMSS, Imprivata
- Panel: Mike Davis, Veterans Health Administration; Michelle De Mooy, Consumer Action; Barbara Evans, University of Houston Law Center; Mark Frisse, Vanderbilt University; Joy Pritts, ONC; Michael Stearns, e-MDs
- Rapporteur: David Wanser, Intellica
3. Secondary uses of personal health information in health databases – Implications of Sorrell vs. IMS Health
- Moderator: William M. Sage, The University of Texas at Austin School of Law
- Panel: Bridget Asay, Attorney General's Office, Vermont; Kimberly Gray, IMS Health; Stephania H. Griffin, Veterans Health Administration; Christian Hamann, Gleiss Lutz, Germany; Latanya Sweeney, Carnegie Mellon University; John Verdi, Electronic Privacy Information Center
- Rapporteur: Benedicte Callan, LBJ School of Public Affairs, University of Texas at Austin
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Lunch Keynote
12:50 - 2:20
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"What Do Research and History Tell Us About Privacy Today?: A Conversation with Alan Westin"
- Keynote Discussion: Jeffrey Rosen, George Washington University; Alan Westin, Arnall Golden Gregory, Atlanta and Washington DC.
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Putting the “I” in Health IT Privacy and Security: How Consumers Can Be Part of the Policy-Making Process
- Remarks by Joy Pritts, ONC
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Session 4
2:25 - 3:20
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Breakout Groups on Privacy and the Future of HIT
Concurrent sessions to develop problem statements, to identify research needs, to articulate actionable technical, educational and/or policy recommendations.
- What principles and regulations should apply to the collection and use of health data? And how should they be enforced?
Moderated by: Barry Steinhardt, Privacy International
- Business Analytics, Data Exchange, and the Public Good,
Moderated by:Barry Chaiken, former chairman HIMSS, Imprivata
- Developing a Collaborative Approach - Realizing Benefits of Health Data Whilst Enabling Patient Control,
Moderated by: Joe McCarron, Reos Partners & Brian Mulconrey, Tomorrow's Enterprises Corporation
- Educating the States and the Public about Health Privacy,
Moderated by: H. Westley Clark, SAMHSA
- Meeting the technical challenges of distributed consent and authorization
, Moderated by: Steve Steffensen, TATRC, US Army
, with Special Guest: Guido van 't Noordende
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20 minute break 3:25 - 3:45
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Session 5
3:55 - 4:50
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Looking Ahead: The 2012 Health Privacy Agenda
Panel discussion with representatives from workgroups
- Moderator: David W. Hilgers, Brown McCarroll, L.L.P. &ABA Health Privacy
- Panel: Session 4 Workgroup Moderators; David Warner, LBJ School of Public Affairs, The University of Texas at Austin; Deborah C. Peel, Patient Privacy Rights
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Reception
5:00 - 6:30
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Reception for All Summit Attendees
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