Coalition Goals and Activities

Monitor the Health IT Policy Committee & Standards Committees and provide summaries and action item recommendations for every meeting.
Make recommendations to the relevant federal committees and regulatory agencies, Office of National Coordinator for Health IT, Health and Human Services, Federal Trade Commission and others.
Activate members and groups to advocate for privacy‐enhancing technologies, laws, and policies.
Empower individuals to protect their personal health information and provide them with tangible, user‐friendly tools.
Ensure clear and consistent communication among Coalition partners.
Provide a Rapid Response Kit for media and decision makers.
Engage private sector to adopt innovative privacy‐enhancing technologies and policies and promote a strong culture of protecting individual privacy regardless of regulations and law.
Tap into technical expertise and collaborate with industry and the marketplace to provide privacy solutions for Health IT products and systems.

Recognize that patients own their health data
Give patients control over who can access their electronic health records
Give patients the right to opt-in and opt-out of electronic systems
Give patients the right to segment sensitive information
Require audit trails of every disclosure of patient information
Require that patients be notified of suspected or actual privacy breaches
Require breach notification, privacy safeguards and whistleblower protections, including meaningful enforcement of privacy rights
Provide meaningful penalties and enforcement for privacy violations
Require that health information disclosed for one purpose may not be used for another purpose without informed consent
Insure that consumers can not be compelled to share electronic health records to obtain employment, insurance, credit, or admission to schools
Deny employers access to employees’ medical records
Preserve stronger privacy protections in state laws

Patient Privacy Rights