DAY 1 – WEDNESDAY, JUNE 6, 2012
Lawrence O. Gostin, JD, LLD (Hon) & Deborah C. Peel, MD
” Creating a Culture of Privacy & Security Awareness”
Farzad Mostashari, MD, HHS, National Coordinator for Health IT
Celebration of Privacy
“Celebration of Privacy”
(Video of Full Event)
Presentation of the First Louis D. Brandeis Privacy Awards
Presentation of theDataMap.org by Latanya Sweeney, PhD, a project of the Harvard Data Privacy Lab and Patient Privacy Rights.
DAY 2 – THURSDAY, JUNE 7, 2012
A mini-course on state and federal health privacy laws and regulations, common law, tort law, and Constitutional decisions that shape Americans’ rights to health information privacy.
“HIEs: What We Know and Don’t Know, Data Segmentation, Patient-Centered Options (e.g., opt-in/opt-out)”
Addresses actions to implement health data exchange and their effects on privacy. The panel will discuss the best/worst ways the mandate for data exchange is being implemented.
Are the special protections in state and federal law effective against the use of genetic data by health insurers and employers? Is genetic data more sensitive or more valuable than other health data? The panel explores how genetic data privacy is challenged by the collection and biobanking of samples, the sale and use of genetic data, attachment of genetic information to EHRs, and increased collection and use of genetic outside of healthcare.
“How do Social Media, Mobile Devices, Medical Devices and Implants, Online “Health Websites,” and Clouds Threaten Health Privacy?”
Discusses how new technologies, many of which are outside of the healthcare system, further erode individual control over the use personal health information.