Rekindling the patient ID debate

Unique patient identifiers pose enormous implications for patient control and privacy. Dr. Deborah Peel is quoted in this article explaining how detrimental UPIs will be for patient trust and safety. To view the full article, please visit Rekindling the patient ID debate.

Key Quotations:

“The idea of unique patient identifiers (UPIs) is not a concept extracted from the next dystopian novel. It could very well be reality in the not-so-distant future. The question remaining, however, is whether or not the benefits of such technology outweigh constitutional privacy and patient trust concerns.”

“Deborah Peel, MD, founder of Patient Privacy Rights, and a fierce opponent of UPIs, writes in a Jan. 23 Wall Street Journalarticle, ‘In the end, cutting out the patient will mean the erosion of patient trust. And the less we trust the system, the more patients will put health and life at risk to protect their privacy.’

Peel points to the present reality of patient health information – genetic tests, claims data and prescription records – already being sold and commercialized. ‘Universal healthcare IDs would only exacerbate such practices,’ she avers.”

PPR in the Wall Street Journal

The Journal Report of The Wall Street Journal featured Patient Privacy Rights’ founder in a debate about Unique Patient Identifiers (UPIs). Deborah C. Peel, MD, founder & chair of Patient Privacy Rights, opposes UPIs, pointing out there are better electronic records systems that allow patients to control data exchanges for treatment and other approved uses.

You can read both sides of the debate at this link: “Should Every Patient Have a Unique ID Number for All Medical Records?”

While voting remains open, the scores have remained fairly static over the past month showing a clear victory. Deborah Peel, MD has won the debate for Patient Privacy Rights, exposing the dangers of UPIs in electronic health record systems. If you have not already, you can still vote “No” to UPIs, and help protect patients, privacy, and progress toward patient-controlled electronic health records. If you are in the main article, voting takes place on the left side of the screen below the picture of Michael Collins. You can also use this direct link to vote after reviewing the full debate.

To dispel the myths of UPIs:

  • Trying to separate UPIs from financial records would be like trying to separate SSNs from everything they have been linked to, including medical records!
  • UPIs will give government, industry, data miners, and others greater ability to collect all health information on individuals. Imagine giving everyone a unique financial identifier that they would use for all credit cards, banks, retailers, and other financial institutions. Would you feel your money was secure?
  • A surprising amount of patients already do not trust a paper-based system, and fear for their privacy even more with expanding Health IT. Having a UPI takes away the idea of patient control and consent, creating one very easy and obvious way for anyone with the means necessary to look up a patient’s full health record. Patients will only accept a system they can control.

We do our work to improve health care by protecting patient privacy. We encourage you to protect your own privacy rights by voting now.