Consumer Advocate: Patient Consent Vital

Deborah Peel, M.D., founder of Patient Privacy Rights, on protecting the privacy of healthcare information.
Listen to the Interview Here.

Patients have inadequate control over who can access their healthcare information, but existing technologies can solve the problem, says consumer advocate Deborah Peel, M.D.

Her organization, Patient Privacy Rights, recently issued a white paper outlining an approach to giving patients opportunities to offer informed consent for accessing their records. In an interview, Peel outlined the key points in the report…

View a PDF version of the white paper: The Case for Informed Consent
Listen to the interview: Patient Consent Vital

Health IT group drafts privacy recommendations

A federally chartered advisory work group charged in June with devising recommendations on privacy and security policies to support the government’s electronic health-record system subsidy program presented today its near-final list of guidelines to the Health Information Technology Policy Committee.

The work group, known as the privacy and security tiger team, met Monday and released what amounts to a consensus report on its recommendations, said Deven McGraw, co-chair of the tiger team and director of the Health Privacy Project at the Center for Democracy and Technology, a Washington think tank. The Health IT Policy Committee advises the Office of the National Coordinator for Health Information Technology at HHS…

According to the tiger team’s draft document posted on the HIT Policy Committee’s website, the team’s recommendations are based on “fair information practices,” a now globally accepted set of privacy policy guidelines that stems from a 1973 report by the U.S. Department of Health, Education and Welfare.

“All entities involved in health information exchange—including providers and third-party service providers like Health Information Organizations (HIOs) and intermediaries—follow the full complement of fair information practices when handling personally identifiable health information,” according to the tiger team proposal.