What does autonomy mean?

Written in response to the following article:


When it comes to clinical-decision software, what does autonomy mean?

 

The current rage for building , selling, and using “bedside analytics” and Big Data technologies is all about financial gain for investors and corporations, it is not about the best interests of the public.
 
Whatever advances the Kaiser technology offers are all proprietary and hidden. Nothing is tested/vetted scientifically by other academic experts. I’ve written before about Mayo’s Bedside Analytics—it’s the exact same thing—all secret.
 
The privatization of the science of Medicine and the privatization of research in Medicine is an incredibly bad development for the people of the US. This is not the case in Europe or other Western nations. Only in the US does money trump science and the greater good.
 
In the past, US Medicine advanced via science: research data and results/conclusions were always openly shared, vetted, and tested by other researchers. Advances in knowledge were always shared for the greater good.
 
The practices of Medicine and Nursing in the US used to be “professions” with ethics that required physicians and nurses to put patients’ needs and interests first, ahead of their own personal interest. The underlying idea was that advances in Medicine belong in the public domain. Suppose Salk and Sabin had privatized their research and the resulting injected and oral polio vaccinations?  If profit had always been the motive of Medicine and Nursing, would these professions have ever gained the public’s trust?
 
Now the National Nurses United opposes the use of these technologies. BRAVO!!!!
 
Where is the comparable response from any medical professional organization? So far, there is none.
 
deb

 

UK Handing off their health records?

Federal Computer Week: U.K. mulls handing off national health records to Microsoft, Google

It will be interesting to see which one the UK chooses. Microsoft joined the bipartisan Coalition for Patient Privacy to urge Congress to restore consumer control over PHI in 2007. Google has not.

MS signed Coalition letters in 2007 and 2009, and agreed to support the Coalition’s tough privacy principles and health privacy rights in electronic systems. HealthVault was built to adhere to the Coalition’s stringent privacy principles. Open, public promises by major corporations are taken very seriously by federal regulatory agencies and consumer advocates.

The promises by the technology corporations that joined the Coalition are a rebuke to other HIT vendors and the data mining industry that will do anything to get their hands on PHI for all sorts of uses that patients would never agree to.

Today, the clearest sign of serious corporate commitment to health privacy rights is joining the Coalition for Patient Privacy and standing with consumers to build an ethical, legal HIT system—the only kind that will be trusted and succeed.

UK Handing off their health records?

Federal Computer Week:U.K. mulls handing off national health records to Microsoft, Google

It will be interesting to see which one the UK chooses. Microsoft joined the bipartisan Coalition for Patient Privacy to urge Congress to restore consumer control over PHI in 2007. Google has not.
MS signed Coalition letters in 2007 and 2009, and agreed to support the Coalition’s tough privacy principles and health privacy rights in electronic systems. HealthVault was built to adhere to the Coalition’s stringent privacy principles. Open, public promises by major corporations are taken very seriously by federal regulatory agencies and consumer advocates.

The promises by the technology corporations that joined the Coalition are a rebuke to other HIT vendors and the data mining industry that will do anything to get their hands on PHI for all sorts of uses that patients would never agree to.

Today, the clearest sign of serious corporate commitment to health privacy rights is joining the Coalition for Patient Privacy and standing with consumers to build an ethical, legal HIT system—the only kind that will be trusted and succeed.