To view the full article, please visit New Framework Details 15 Core Health Privacy Principles.
HealthDataManagement.com recently posted this article about Patient Privacy Rights’ Privacy Trust Framework. The article tells HealthDataManagement readers “The Framework is designed to help measure and test whether health information systems and research projects comply with best privacy practices in such areas as whether patients have control over their protected health information, an organization obtains meaningful consent before disclosing data and obtains new consent before secondary data use occurs, patients have the ability to selectively share data, and the organization uses servers housed in the United States, among other factors.”
The key principles for our Privacy Trust Framework:
* Patients decide if they want to participate.
* Patients decide and actively indicate if they want to be profiled, tracked or targeted.
* Patients decide how and if their sensitive information is shared.
* Patients are able to change any information that they input themselves.
* Patients decide who can access their information.
* Patients with disabilities are able to manage their information while maintaining privacy.
* Patients can easily find out who has accessed or used their information.
* Patients are notified promptly if their information is lost, stolen or improperly accessed.
* Patients can easily report concerns and get answers.
* Patients can expect the organization to punish any employee or contractor that misuses patient information.
* Patients can expect their data to be secure.
* Patients can expect to receive a copy of all disclosures of their information.
The full framework can be viewed at Privacy Rights Framework.