What a Small Moment in the Obamacare Debate Says About Ideological Media

Politics aside, a huge majority of the public agrees that ALL personal information should be protected online, not just when they apply for Obamacare, use electronic health systems, or search online about health.  The right to control the use of personal health data is strongly supported by 95% of Americans.

But like the public, the author doesn’t know that government and corporations already have access to every citizen’s personal health information. See: http://patientprivacyrights.org/truth-hipaa/  HIPAA has not protected our rights to health ‘privacy’ since 2002.

Key conclusions:

  • “The Bush and Obama Administrations both showed with perfect clarity that they don’t give a damn about the privacy rights of Americans; federal bureaucrats serving in both eras have broken the law to hoover up our private information; and every trend points to a federal government intent on expanding its ability to collect information on Americans and share it among agencies. The U.S. has also shown an inability to protect data it stores from being hacked or stolen. Given all that, it isn’t paranoid to imagine that any health information handed over to the federal government won’t remain private for long. A betting man would be wise to conclude that somehow or other, it will at least be seen more widely than Obama Administration officials are promising—especially if additional steps aren’t taken to make the information better protected.”
  • “Outsmarting the most hackish Republicans isn’t enough to fix the flaws in legislation that you championed and passed, substantial warts and all.”

Congress must pass a strong new law soon to giving patients a clear, strong right to control personal health information.  We should decide who can see and use our most sensitive personal information. The nation’s trust in government will only worsen if we cannot protect even our MOST sensitive personal data, from prescription records, to DNA to diagnoses.

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This blog was written in response to the following article: What a Small Moment in the Obamacare Debate Says About Ideological Media

Re: Federal Agencies Paint Regulatory Landscape with Broad Brushstrokes

The Genomics Law Report (GLR) posted an interesting blog about the emergence of mobile health (mHealth) and the role many believe it could play in improving the quality and delivery of health care. It discusses how the mHealth regulatory landscape is still in its early stages of formation and has many key players and components that will help guide its development. It then outlines many of the players, such as the FDA, FCC, FTC, and HHS, and the various ways in which each organization might help shape the future of mHealth.

The story also makes mention of the FTC’s “privacy by design” recommendation for mobile applications, which is undoubtedly a critical component to protecting patients’ privacy as more innovative technologies and apps hit the marketplace. However, aside from ensuring that strong privacy controls are built into the apps up front, it will also be important to make sure patients have other important privacy protections, like control over their sensitive health information, no matter the medium used to collect and share it.

To read the full blog from GLR, click here.