Genetic Privacy Debate hits Major League Baseball

July 22nd, 2009
The story highlights the use of DNA testing by ‘employers’–Major League Baseball franchises. Baseball tests to verify the ages and identities...

On HealthDataRights.org and their Declaration

June 23rd, 2009
HealthDataRights.org supports only ACCESS to personal health data–which is a no-brainer and a right Americans have always had. The stimulus bill makes clear that...

But privacy is ALREADY gone!

June 22nd, 2009
Refer to Wall Street Journal article: Is Government Health Care Constitutional? The authors fear that Americans’ health privacy rights will be eliminated by health reform...

First HIT Policy Committee Meeting on Stripping Privacy Away?

May 11th, 2009
No surprise the new HIT Policy committee is gearing up to eliminate privacy, i.e. patient control over personal health information, using the excuse that...

A Start to Securing PHI?

May 6th, 2009
Sometimes press releases for new products tell us far more about the risk of identity theft in electronic health systems than the mainstream press...

From Sharing Music to Sharing Medical Records

February 24th, 2009
Scientific American gets it. Do you? View story here. Dr. Eric Johnson’s latest study is out. Our job is to inform the public and Congress,...

Pro-Privacy Will Continue to Grow

January 27th, 2009
More and more genuine consumer pro-privacy groups —as opposed to privacy-lite, industry-supported, faux consumer organizations—are speaking out to restore privacy in electronic health systems....

Genomes: Behold or Beware

December 9th, 2008
Patients whose physicians “collaborate” with genetic testing corporations should beware. Today, Navigenics and all genetic testing businesses can legally sell genomic data. There is...

The Health Record Paparazzi is Above the Law and In Bed With Congress

October 11th, 2007
We learned today that all of us are a bit like George Clooney: the Health Record Paparazzi loves a celebrity, but it loves the...