To view the full article, please visit: Five More Organizations Join Lawsuit Against NSA Surveillance
“The five entities joining the First Unitarian Church of Los Angeles v. NSA lawsuit before the U.S. District Court for the Northern District of California are: Acorn Active Media, the Charity and Security Network, the National Lawyers Guild, Patient Privacy Rights and The Shalom Center. They join an already diverse coalition of groups representing interests including gun rights, environmentalism, drug-policy reform, human rights, open-source technology, media reform and religious freedom.”
“A coalition of six consumer privacy groups is calling on the Federal Trade Commission to enforce an earlier consent order with Facebook and block proposed changes in the social network’s Statement of Rights and Responsibilities and its Data Use Policy because the proposed changes violate the 2011 settlement with the Commission.”
“The changes will allow Facebook to routinely use the images and names of Facebook users for commercial advertising without consent,” the groups said. “The changes violate Facebook’s current policies and the 2011 Facebook settlement with the FTC. The Commission must act to enforce its order.”
Signing the letter were Consumer Watchdog, the Electronic Privacy Information (EPIC), the Center for Digital Democracy, Patient Privacy Rights, U.S. PIRG, and Privacy Rights Clearing House. Read a copy of the letter here: http://www.consumerwatchdog.org/resources/ltrfacebookftc090413.pdf
“Facebook has long played fast and loose with users’ data and relied on complex privacy settings to confuse its users, but these proposed changes go well beyond that,” said John M. Simpson, Consumer Watchdog’s Privacy director. “Facebook’s overreach violates the FTC Consent Order that was put in place after the last major privacy violation; if the Commission is to retain any of its credibility, it must act immediately to enforce that order.”
To view the full article, please visit: http://www.marketwatch.com/story/consumer-watchdog-and-other-privacy-groups-urge-ftc-to-block-pending-facebook-privacy-changes-2013-09-05
NSA leaks causing public to mistrust the entire internet, not just cell phone providers. Quotes:
The lack of personal control over data online will also affect cloud service providers:
How will the public react when they find that US health data holders—-such as physicians, hospitals, labs, pharmacies, health data exchanges, insurers, mobile apps, etc, etc— use and sell sensitive personal health data?
To view the full article, please visit:
This insightful piece highlights the drastic violations of our current healthcare system in relation to the recent NSA breach.
Key quote from the article:
“What I have a hard time understanding, however, is how one can get worked up into a near panic about an overreaching national security apparatus while also celebrating other government expansions into our lives, chief among them the hydrahead leviathan of the Affordable Care Act (aka ObamaCare). The 2009 stimulus created a health database that will store all your health records. The Federal Data Services Hub will record everything bureaucrats deem useful, from your incarceration record and immigration status to whether or not you had an abortion or were treated for depression or erectile dysfunction.”
To view the full article, please visit My Routine – Mark Rothstein, Law Professor.
This is a very interesting article about Mark Rothstein’s opinion of current governmental actions involving privacy law. Rothstein asserts, “We live in an age in which consent should not be mistaken for choice. We click through consent on software without even reading it. Even if we technically consented, I doubt very much whether the average person would say, ‘Oh sure, it’s OK for my phone company to accumulate all this data about me.’”
In the interview, Rothstein also comments on the views of Louis D. Brandeis, saying “He felt that the government set the tone for society. If the government doesn’t value privacy and invades people’s privacy, then everybody will do that. He also thought it was very important that government activities be subject to review by the political process and the people.”
To view the full article, please visit What is Snowden’s Impact on Health IT?
This is a highly interesting article about the effect of Edward Snowden’s actions on health IT. In the interview with PPR’s own Dr. Deborah Peel, the issues of privacy that our government is currently facing can also be applied to the healthcare industry. As Dr. Peel aptly states, “The Department of Health and Human Services claims its actions are justified to lower healthcare costs. These are obviously very different agencies collecting different kinds of very sensitive personal information, but both set up hidden, extremely intrusive surveillance systems that violate privacy rights and destroy trust in government.”
A key argument that Dr. Peel makes is “The benefits of technology can be reaped in all sectors of our economy without the harms if we restore/update our laws to assure privacy of personally identifiable information in electronic systems. Our ethics, principles, and fundamental rights should be applied to the uses of technology.”
This article expounds upon the implications of Edward Snowden’s actions for the Health IT industry.
Deborah Peel, MD, founder of Patient Privacy Rights, says there are many parallels between the Snowden controversy and the U.S. healthcare system.
According to Peel, the NSA has one million people with top security clearance to 300 million people’s data. The U.S. healthcare system has hundreds of millions of people — none with top security clearances, and the majority with inadequate basic training in security or privacy — who can access millions of patients’ most sensitive health records. Further, we don’t know how many millions of employees of BAs, subcontractors, vendors and government agencies have access to the nation’s health data, she added.
“Corporations and their employees that steal or sell Americans’ health data for ‘research’ or ‘public health’ uses or for ‘data analytics’ without patients’ consent or knowledge are rewarded with millions in profits; they don’t have to flee the country to avoid jail or charges of espionage,” she said.
“The NSA justifies its actions using the war on terror,” Peel added. “The Department of Health and Human Services claims its actions are justified to lower healthcare costs. These are obviously very different agencies collecting different kinds of very sensitive personal information, but both set up hidden, extremely intrusive surveillance systems that violate privacy rights and destroy trust in government.”
“The benefits of technology can be reaped in all sectors of our economy without the harms if we restore/update our laws to assure privacy of personally identifiable information in electronic systems. Our ethics, principles, and fundamental rights should be applied to the uses of technology,” Peel says.
“If healthcare organizations truly want to protect patient privacy and earn public trust regarding electronic health records (EHRs), they need to let go of the notion that institutions control individual data and look for technology that lets patients take charge of information flow…”
Key quotes from the article:
The NSA knows we are sick because we phone doctors’ offices.
As a mental health professional, Dissent Doe explains in her blog (below) how revealing phone call metadata is:
“Because my phone is used mainly for calls to and from patients and clients, can the NSA figure out who my patients are? And could they, with just a query or bit of analysis, figure out when my patients were going into crisis or periods of symptom worsening? I suspect that they can. And because I am nationally and internationally known as an expert on a particular disorder, could the government also deduce the diagnosis or diagnoses of my patients or their family members? Probably.”
There is a huge national media response to the NSA spying on Americans’ cell phone calls, but the media does NOT report on the far worse systemic corporate and government spying on the nation’s electronic health records.
The US healthcare system is engineered for hidden corporate and government surveillance of personal data about the minds and bodies of all 300 million Americans –from prescriptions to diagnoses to DNA—it’s all collected and sold.
The US media simply repeats industry and government talking points about the benefits of electronic health systems without reporting on the massive harms:
2013 is a critical year: every state will share your health data with hundreds-thousands more hidden users via Health Information Exchanges (HIEs).
SIGN PPR’s petition and say “no” to data exchange without your consent at: http://patientprivacyrights.org/2013/06/sign-the-petition-for-patient-controlled-exchange-of-health-information/
Great existing technologies can fix badly designed electronic health systems, but we need new laws that require privacy-protective technologies are built into all electronic systems that handle health data.