2012 Health Privacy Summit – SAVE THE DATE!

June 6-7th, 2012
2nd International Summit on the
Future of Health Privacy
Georgetown Law Center, Washington, DC

Patient Privacy Rights is happy to announce the 2nd International Summit on the Future of Health Privacy will be held June 6-7th, 2012 at the Georgetown Law Center in Washington, DC. If you would like to receive a notice when registration is officially open, please sign up to receive updates.

Patient Privacy Rights is very excited to be working with these remarkable academic institutions & partners for the 2012 Health Privacy Summit:

Re: Top 100 – Under Their Influence

This is in response to the article in Modern Healthcare By Andis Robeznieks: “Under their influence, Washington insiders hold sway over our ‘100 Most Influential’ ranking, but real change seems to be coming from elsewhere.”

“The Politics of Privacy” is one of four key areas in Modern Healthcare’s story about the “100 Most Influential People in Healthcare” in 2011. Privacy was highlighted because the expectation to control personal health data is a truly bipartisan, trans-partisan issue.

The historic first-ever summit on the future of health privacy co-sponsored by Patient Privacy Rights (PPR) and the UT LBJ School in June was highlighted (see www.healthprivacysummit.org to watch videos of the sessions).

The story recognizes the crucial importance of PPR’s leadership on building patients’ rights to control use of the most sensitive personal information into the healthcare system up front, so patients will use and trust health IT systems and data exchanges.

Unfortunately, many of the new consumer privacy protections the Obama Administration supported in the stimulus bill (HITECH) are being implemented by federal agencies in ways that do not comply with HITECH and other existing federal regulations.

If industry and key government rule makers continue to ignore the American people’s expectations for control over the use of sensitive personal health data, the stimulus billions will be wasted on systems that can’t be trusted and the tremendous potential benefits health IT can bring to treatment and research may never be realized.

Interview: Protecting patient privacy rights in a wired world

In this podcast, Andy Oram interviews Dr. Deborah Peel of the Patient Privacy Rights Coalition about Getting IT Right: Protecting Patient Privacy Rights in a Wired World, a preconference to be held in conjunction with the illustrious Computers, Freedom, and Privacy conference this year.

Listen to the Interview here

Topics covered in the interview include:

  • The evolution of patient privacy.
  • Weaknesses in the current privacy regime for health care.
  • Goals, structure, and intended outcomes for the conference.
  • A look at featured speakers and attendees, including: Joy Pritts, ONC, Chief Privacy Officer; Jessica Rich, Deputy Director, FTC Bureau of Consumer Protection; Stephania Griffin, VHA Privacy Officer; AZ Senator Nancy Barto, Chairman of the Senate Healthcare and Medical Liability Reform Committee; Stephanie Perrin, Canadian privacy expert; Ross Anderson, Cambridge University, UK; Latanya Sweeney, Harvard, MIT, Carnegie Mellon; Helen Nissenbaum , Professor of Media, Culture and Communication, and Computer Science, New York University; Lee Tien, EFF.

Related links:

Listen to the O’Reilly Interview on Health Privacy Summit with Deborah Peel

“Getting IT Right: Protecting Patient Privacy Rights in a Wired World”

Official Pre-conference for CFP2011

June 13, 2011 Georgetown Law Center Washington, D.C.

“Getting IT Right: Protecting Patient Privacy Rights in a Wired World” is the nation’s first open and inclusive public forum to discuss the future of health privacy in a digital age. The conference will be held June 13, 2011 at the Georgetown Law Center in Washington, D.C. and is the result of a partnership between the Lyndon B. Johnson School of Public Affairs at The University of Texas at Austin and the Patient Privacy Rights Foundation, the premier health privacy advocacy organization in the United States.

You can find the agenda, a list of speakers, and more relevant news on the summit at the official website:www.healthprivacysummit.org.

Register Now: www.healthprivacysummit.org/registration