Another story about why health technology is not ready for prime time. Today untested, unsafe health technologies and applications that eliminate patient control over sensitive personal health information are mandated for use by physicians and hospitals.
Today patient health data is widely disclosed and sold through electronic systems See ABC Story about the sale of diabetic patient records for $14-$25 per patient). It will be years until patients can control sensitive information (from prescriptions to DNA to diagnoses) because systems were never designed to comply with patients’ rights to control health records. There is no data map to know where our personal health data is held or what it’s being for (see Prof Sweeney explain the need for a health data map on video).
In addition, health technology also poses serious risks to patient including:
- -patient/data mismatches between systems (which would not happen if patients controlled the use and disclosure of their information)
- -interoperability failures with medical devices and health IT systems
- -Caregiver distractions from smartphones and other mobile devices