From Nancy Smith of the Sunshine State News:
Snafus involving the mandated switch from paper to electronic medical records have been happening for the last few years as the Affordable Care Act geared up. Horror stories — like the one about a California orthopedic surgeon whose medical-records software provider sold his patients’ records to anybody who wanted them — are more common than most people realize. Read the incredible story.
“This is a nightmare. It’s nothing we’ve ever seen before in medicine,” said patient privacy-rights advocate Dr. Deborah Peel.
Peel said many patients and doctors don’t know the federal government quietly eliminated patients’ privacy rights for electronic records. “It’s a free-for-all,” she said. “It’s the Wild West. Today there are over 4 million different kinds of organizations and companies that can see and use our medical records without our knowledge, without our permission and we can’t refuse.”
Peel said we can actually thank Healthcare.gov, the Obamacare sign-up website, for waking us up and making us think about what happens to our personal health information on a big bureaucratic website.
All of a sudden, Americans get it, she said — and the Obama administration isn’t pleased at having to deal with another strain of negativity in the rollout of its health plan. The government, remember, spent some $2 billion just to encourage the adoption of electronic health records.
Peel, a physician and probably the most renowned national speaker on health privacy, believes Healthcare.gov will amount to government surveillance of all health information unless some mobile “app” is developed so patients can access and control the dispersal of their own data, with Social Security numbers at the top of the list.
“Health information is the most valuable personal data about you, bar none,” Peel said. “We (at Patientprivacyrights.org) tremendously support technology, but technology that’s smart, that serves you and does what you expect — that doesn’t serve hidden industries that steal data or (is subject to) government surveillance. Government technology could put us in much better control of our information.
“We need to develop a mobile ‘app’ that would let you find out what happens to your information We need new technology and privacy protections to be put in place.” See Peel’s remarks on Patientprivacyrights.org.
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