Harvard’s Data Privacy Lab Launching HRB

We are proud that one of our Board of Directors of Patient Privacy Rights, Latanya Sweeney, PhD, is leading this major project that puts patients in control of the collection and use of sensitive personal health information in a very secure ‘health bank’. No information can be disclosed without the patient’s informed consent.

Link to Harvard’s Data Privacy Lab
Link to Article in Healthcare IT News

Health banks can enable health information to exchange data for treatment and other uses WHEN patients say so, instead of the way today’s electronic systems operate: millions of employees of “covered entities” like hospitals and hospital chains, clinics, doctor’s offices, health plans, and health clearinghouses decide when to use, sell, or disclose patients’ health information for a myriad of reasons without obtaining informed patient consent or giving advance notice.

Today, Americans have no idea which parts of their sensitive personal health data is being disclosed to whom or for what purposes. Moving to a health banking system would put patients back in charge of records, not corporate and government users, or researchers.

PPR is working with Professor Sweeney and her lab on a complementary project to map where health data flows. Patients cannot weigh the risks of using electronic health systems without knowing where their data goes and who is using it. Professor Sweeney will unveil the PPR/Harvard Data Privacy Lab Health Data Map on June 6th in DC at the 2nd International Summit on the Future of Health Privacy. Registration to attend or watch via live-streamed video is free.

Featured Participants in 2012 DC Health Privacy Summit Announced

March 21, 2012

FOR IMMEDIATE RELEASE

Contact:
Deborah C. Peel, MD
media@healthprivacysummit.org
(512)732-0033

Featured Participants for 2012 Health Privacy
Summit at Georgetown University Announced
Rep. Joe Barton, R-Texas, to Receive Honor;
Farzad Mostashari, MD, ScM, to Deliver Opening Keynote;
Ross Anderson, PhD, FRS, Delivers Evening Keynote

Austin, TX – March 20, 2012 – Organizers today announced a noted honoreeand two outstanding keynote speakers to be featured at the Second International Summit on the Future of Health Privacy, planned for June6th-7th, 2012, at the Georgetown University Law Center in Washington,D.C.

U.S. Congressman Joe Barton will be honored as a “Privacy Hero” during the 2012 Summit’s “Celebration of Privacy” on the evening of June 6. The award recognizes Rep. Barton’s critical role as a top Congressional privacy advocate beginning with co-founding the Congressional Bipartisan Privacy Caucus with Rep. Edward Markey in 2000. His leadership ensured House support for the historic new consumer privacy and security protections in the Health Information Technology for Economic and Clinical Health (HITECH) Act.

The opening keynote will be presented by Farzad Mostashari, MD, ScM, the National Coordinator for Health Information Technology at the U.S. Department of Health and Human Services. In addition, Ross Anderson, PhD, FRS, of the University of Cambridge, U.K., will deliver the evening keynote speech.

The 2012 Summit is hosted by Patient Privacy Rights and Georgetown University’s O’Neill Institute on Global and Health Law to provide an international venue for serious discussion by experts and thought leaders on timely privacy issues. Participants will consider how patients’ privacy and civil rights are impacted by current law and regulations, health technologies and architectures (including mHealth and ‘clouds’), data exchange, secondary uses of health data, and social media platforms. The theme addressed at this year’s Summit will be: Is There an American Health Privacy Crisis?

Summit sessions will also explore health privacy through the lens of U.S. and international policies about health information privacy, such as the recent Consumer Bill of Privacy Rights and the EU Draft Regulation on the Protection of Individuals with Regard to the Processing of Personal Data and on the Free Movement of Such Data.

More About U.S. Representative Joe Barton, R-Texas
Rep. Joe Barton, a 28-year veteran member of the U.S. Congress and Chairman Emeritus of the U.S. House of Representatives’ Energy and Commerce Committee, will receive a “Privacy Hero” award at the 2012 Summit.

The award recognizes Rep. Barton’s critical role as a top Congressional privacy advocate beginning with co-founding the Congressional Bipartisan Privacy Caucus with Rep. Edward Markey in 2000. His award is for his leadership in 2009, which ensured House support for the historic new consumer privacy and security protections in the Health Information Technology for Economic and Clinical Health (HITECH) Act.

More About Farzad Mostashari, MD, ScM
As National Coordinator for Health Information Technology at the U.S. Department of Health and Human Services, Farzad Mostashari, MD, ScM, is charged with promoting the development of a secure and interoperable nationwide health information technology infrastructure.

Dr. Mostashari’s position was mandated through the Health Information Technology for Economic and Clinical Health (HITECH) Act of 2009 and is focused on improving healthcare and clinical research, reducing its cost, and protecting patient health information. Previously, Dr. Mostashari held leadership positions at the New York City Department of Health, including establishing their Bureau of Epidemiology Services, and helped pioneer real-time electronic disease surveillance systems.

More About Ross Anderson PhD, FRS
Ross Anderson PhD, FRS, is a professor of security engineering at the University of Cambridge Computer Laboratory in the United Kingdom. Dr. Anderson is a researcher, writer, industry consultant, and expert in “building systems to remain dependable in the face of malice, error or mischance.”

More About the 2012 Summit Partners
Organizations partnering with Patient Privacy Rights to present the 2012 Health Privacy Summit include:

Registration for the 2012 Summit is free, but space is limited. Register now at http://www.healthprivacysummit.org. Last year’s First International Summit on the Future of Health Privacy successfully established a global public forum on the future of health privacy. Panel members included health privacy experts from academia, industry, technology, consumer advocacy, top government officials, and international experts. Learn more about the 2011 Summit here. Videos are available.

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O’Neill Institute for National and Global Health Law
The O’Neill Institute for National and Global Health Law at Georgetown University was established in 2007 to respond to the need for innovative solutions to the most pressing national and international health concerns. For more information, visit http://www.law.georgetown.edu/oneillinstitute/about/index.html.

Patient Privacy Rights
Patient Privacy Rights is the nation’s leading bipartisan health privacy organization and leading consumer voice for building ethical, trustworthy healthcare IT systems. For more information, visit http://patientprivacyrights.org.

2012 Health Privacy Summit – SAVE THE DATE!

June 6-7th, 2012
2nd International Summit on the
Future of Health Privacy
Georgetown Law Center, Washington, DC

Patient Privacy Rights is happy to announce the 2nd International Summit on the Future of Health Privacy will be held June 6-7th, 2012 at the Georgetown Law Center in Washington, DC. If you would like to receive a notice when registration is officially open, please sign up to receive updates.

Patient Privacy Rights is very excited to be working with these remarkable academic institutions & partners for the 2012 Health Privacy Summit: