The Case for Informed Consent
August 31st, 2010
Patient Privacy Rights releases white paper making the Case for Informed Consent with Health IT
What could your health records reveal? Take control. Protect your privacy, liberty and opportunities.
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Re: State agency swaps babies’ blood for supplies
May 11th, 2010
After using newborn babies' bloodspots without proper consent, the state of Texas is getting it wrong again.
State agency swaps babies’ blood for supplies
May 8th, 2010
Companies use blood to produce and test equipment. Previously WITHOUT consent.
Indian Tribe Wins Fight to Limit Research of Its DNA
April 21st, 2010
This is a strong example of how patients are willing to opt in to certain research, but will not tolerate secondary uses of their...
DNA Destruction
March 9th, 2010
In the weeks before state health officials destroyed more than 5 million newborn blood samples they had stored without consent, privacy advocates, parents and...
Grab for patient records
May 19th, 2009
MEDICAL market research firm AsteRx plans a grab for doctors’ prescribing records with an offer of powerful business intelligence software free to GPs who...
Taking a Peek at the Experts’ Genetic Secrets
October 20th, 2008
Is Esther Dyson, the technology venture capitalist who is training to be an astronaut, genetically predisposed to a major heart attack? Does Steven Pinker,...
Microsoft et al to employ IT in ‘ground-breaking’ genetics research
October 10th, 2008
SAN DIEGO – Microsoft, Scripps Health, Affymetrix and Navigenics will launch what the companies say is ground-breaking research to evaluate the impact of personal...
Microsoft Joins Study to Gauge Impact of Genetic Testing
October 8th, 2008
Microsoft is co-sponsoring a study to see if people who undergo genetic testing to identify their risk for developing certain diseases actually change their...
Brin Steps Into Genetic Ethics Debate With Blog Revelation
September 19th, 2008
The inaugural blog post of Google cofounder Sergey Brin contains a revelation that he has a predisposition to a certain type of Parkinson’s disease....