Re: Genetic Bar Code Search – Finding People in Huge Gene Pools
April 9th, 2012
Even without having the DNA... Could it find you?
What could your health records reveal? Take control. Protect your privacy, liberty and opportunities.
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Re: Sizing Up the Family Gene Pool
February 26th, 2012
Genetic testing companies sell people's test results.
HIStalk Interviews Deborah Peel MD, Founder, Patient Privacy Rights
October 3rd, 2011
Honored to be interviewed by Mr. HIStalk, Chief Information Officer (CIO) and a top industry source for truthful information about health technology.
Is football worth surrendering genetic privacy for generations?
September 20th, 2010
U.S. colleges and universities for the first time are requiring top student athletes to submit to testing for the gene for sickle cell anemia,...
The Case for Informed Consent
August 31st, 2010
Patient Privacy Rights releases white paper making the Case for Informed Consent with Health IT
Re: State agency swaps babies’ blood for supplies
May 11th, 2010
After using newborn babies' bloodspots without proper consent, the state of Texas is getting it wrong again.
State agency swaps babies’ blood for supplies
May 8th, 2010
Companies use blood to produce and test equipment. Previously WITHOUT consent.
Indian Tribe Wins Fight to Limit Research of Its DNA
April 21st, 2010
This is a strong example of how patients are willing to opt in to certain research, but will not tolerate secondary uses of their...
DNA Destruction
March 9th, 2010
In the weeks before state health officials destroyed more than 5 million newborn blood samples they had stored without consent, privacy advocates, parents and...
Grab for patient records
May 19th, 2009
MEDICAL market research firm AsteRx plans a grab for doctors’ prescribing records with an offer of powerful business intelligence software free to GPs who...