Experts tout Blue Button as enabling information exchange between medical provider and patient

Blue Button Plus (BB+) and direct secure email technologies could put patients in control of all use and disclosure of their electronic health records. BB+ lets us ‘view, download, and transmit’ our own health data to physicians, researchers, or anyone we choose.

But state Health Information Exchanges (HIEs) don’t allow patients to control the disclosure of personal health data. Some state HIEs don’t even ask consent; the HIE collects and shares everyone’s health records and no one can opt-out. Most state HIEs ask patients to grant thousands of strangers—employees of hospitals, doctors, pharmacies, labs, data clearinghouses, and health insurers—complete access to their electronic health records.

When corporations, government, and HIEs prevent patients from controlling who sees personal health data– from prescriptions, to DNA, to diagnoses– millions of people every year avoid or delay treatment, or hide information.

HIEs that open the door to even more hidden uses of health data will drive even more patients to avoid treatment, rather than share information that won’t be private.

Health IT systems that harm millions/year must be fixed. Technology can put us in control of our data, achieve the benefits and innovations we expect, and prevent harms.  We have to change US law to require technologies that put patients in control of their electronic health records.

Insecurities Plague Electronic Health Care

Information security and privacy in the healthcare sector is an issue of growing importance but much remains to be done to address the various issues raised by healthcare consumers regarding privacy and security and the providers’ perspective of regulatory compliance.

Writing in the International Journal of Internet and Enterprise Management, Ajit Appari and Eric Johnson of Dartmouth College, Hanover, New Hampshire, USA, explain that the adoption of digital patient records, increased regulation, provider consolidation and the increasing need for information exchange between patients, providers and payers, all point towards the need for better information security. Without it patient privacy could be seriously compromised at great cost to individuals and to the standing of the healthcare industry.