“Consumer Watchdog joined the Electronic Privacy Information Center (EPIC) and three other public interest groups today in re-iterating their opposition to a proposed $8.5 million settlement in a class action suit against Google for privacy violations in the way it handled users’ search data because proposed recipients of settlement funds don’t represent the interests of the class.”
Big data is an enigma when it comes to healthcare, as described by a panel on Wednesday at the third annual Health Privacy Summit in Washington, D.C., hosted by Patient Privacy Rights. On one hand, according to Deloitte principal Deborah Golden, there are infinite positive possibilities for big data use, such as improving patient safety via openly available medication information.
On the other hand, according to Harvard professor Latanya Sweeney, big data also represents big privacy issues.
“A lot of our problems come from giving data away,” Sweeney said.
Much of the conversation focused on those problems, particularly as they related to data being used without patient consent–or knowledge that they gave consent.
“In the U.S., we tend to take a sector-specific approach to privacy regulation,” David Jacobs, an attorney with the Electronic Privacy Information Center, said. “We’re nowhere near where we should be as far as consumer access to their own medical information to find out where it does and to exercise control over it.”
Our lives are increasingly lived online. A large number of Americans routinely exchange information in cyberspace for personal, business, and other purposes. What privacy and security issues present themselves in this relatively new and increasingly ubiquitous space? What particular privacy concerns might apply when specific entities, such as the government, hold or process our information? What particular considerations might apply when the information being transmitted is particularly sensitive, such as health care information or financial information? How do privacy, security, and information ownership concerns function when information is being exchanged on social networking sites?
The November 3, 2009 event featured a lunchtime keynote address by Christopher N. Olsen, the Assistant Director in the Division of Privacy and Identity Protection at the Federal Trade Commission.
A panel discussion was held from 1 – 2:30 pm and featured:
- Moderator, Jeffrey Rosen, Professor of Law at George Washington University and Legal Affairs Editor for The New Republic
- Deborah C. Peel, MD, Founder and Chair, Patient Privacy Rights; Chair, Coalition for Patient Privacy
- Lillie Coney, Associate Director, Electronic Privacy Information Center; Coordinator, Privacy Coalition
- Alan Davidson, Director of Public Policy, Google
Here is the Video of the Panel:
Tuesday, November 3, 2009
11:30 am – 2:30 pm
Center for American Progress
1333 H. Street NW, 10th Floor
Washington, DC 20005