This computer world article by Lucas Mearian discusses a new survey from CDW, showing patients trust their doctors but not electronic health records. And Many respondents don’t even trust themselves with their own records!
See the full article: U.S. patients trust docs, but not e-health records, survey shows
Sadly, patients should not trust their doctors unless they know their doctors’ electronic health records systems do not sell their personal health information.
The public has no idea that many electronic health systems sell their data. Even doctors may not realize the EHR systems in their offices or in hospitals sell patient data. Many claim to sell “de-identified” data, but it is very easy to re-identify health data.
This practice of selling health data was banned in the stimulus bill but has not been implemented in federal regulations, so it continues unabated.
Worse, the proposed regulations are directed ONLY at the use of health data for marketing, NOT at the health data mining industry that sells real-time, sensitive, detailed patient data profiles to corporations, government, and anyone who can pay for it.
The point of the ban on sale of health data without consent was to end the daily sale of every American’s prescription records from all 54,000 pharmacies, to end the sale of health data from electronic health systems and data exchanges, and to end the sale of health data by all the other organizations that are part of the healthcare system food chain like: insurers, state governments, labs, data warehouses, data management companies, the data analytics industry, business associates, secondary and tertiary data users, etc., etc.
See a brief TV investigative story about one EHR vendor that gives the software to doctors for “free” because its business is selling the patient data: http://www.ktvu.com/news/24278317/detail.html