September 20th, 2010
U.S. colleges and universities for the first time are requiring top student athletes to submit to testing for the gene for sickle cell anemia,...
August 31st, 2010
Patient Privacy Rights releases white paper making the Case for Informed Consent with Health IT
May 11th, 2010
After using newborn babies' bloodspots without proper consent, the state of Texas is getting it wrong again.
April 21st, 2010
This is a strong example of how patients are willing to opt in to certain research, but will not tolerate secondary uses of their...
March 9th, 2010
In the weeks before state health officials destroyed more than 5 million newborn blood samples they had stored without consent, privacy advocates, parents and...
October 29th, 2009
See this CBS News article: Want A Job In Akron? Hand Over Your DNA
The idea that GINA protects genetic tests from being held...
October 29th, 2009
It’s not unusual for employers to conduct criminal background checks during the hiring process. But the University of Akron has taken this...
July 22nd, 2009
The story highlights the use of DNA testing by ‘employers’–Major League Baseball franchises. Baseball tests to verify the ages and identities...
July 21st, 2009
Confronted with cases of identity and age falsification by Latin American baseball prospects, Major League Baseball is conducting genetic testing on some...
October 22nd, 2008
Giving your genome to a for-profit corporation for testing today is a very dangerous act for the following reasons:
1) Americans NO longer have the...
