Re: Invasion of the Data Snatchers
January 15th, 2013
Bill Keller’s NYTimes op-ed, “Invasion of the Data Snatchers,” is a fantastic piece on the hazy lines surrounding individual privacy in our new “surveillance...
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Health IT group drafts privacy recommendations
August 19th, 2010
Tiger Team releases their proposal on how to handle your most personal information based on "fair information practices" from 1973.
Problems with IBM’s new “massive” research study
May 10th, 2010
The problem is IBM’s research project does not appear to start with obtaining informed consent from the individuals (or their parents) whose data will...
IBM launches massive health data research project
May 6th, 2010
IBM has announced it has launched a multi-year research project to connect and analyze enormous collections of data from a wide variety of sources...
How to reconcile Kaiser’s statements about who can access patient data
March 9th, 2010
Kaiser Permanente does not seem to stick with the same story when it comes to privacy.
Open Source Research
October 9th, 2009
See the Government Health IT article: NCI to open research grid to cancer patient ‘army’
Women desperate to cure breast cancer are contributing...
De-identified? Yeah, right.
September 9th, 2009
See these articles:
Netflix Contest Seen As Posing Privacy Risk
Netflix is about to commit a privacy Valdez with its customers’ viewing data
AOL, ...
Security and Hacking, Real Fears
August 4th, 2009
See the WSJ Article: New Epidemic Fears: Hackers
Securing health records in small doctor’s offices and clinics is not easy: small offices can’t...
On HealthDataRights.org and their Declaration
June 23rd, 2009
HealthDataRights.org supports only ACCESS to personal health data–which is a no-brainer and a right Americans have always had. The stimulus bill makes clear that...
But privacy is ALREADY gone!
June 22nd, 2009
Refer to Wall Street Journal article: Is Government Health Care Constitutional?
The authors fear that Americans’ health privacy rights will be eliminated by health reform...