Problems with IBM’s new “massive” research study

May 10th, 2010

The problem is IBM’s research project does not appear to start with obtaining informed consent from the individuals (or their parents) whose data will...

IBM launches massive health data research project

May 6th, 2010

IBM has announced it has launched a multi-year research project to connect and analyze enormous collections of data from a wide variety of sources...

AthenaHealth Paying Dearly to Take on Larger Rivals

May 6th, 2010

AthenaHealth plans to use your records to make money. They explain how here.

Discussion on Targeting in the UK using the National Health Service

April 12th, 2010

How would American cancer patients feel about being targeted by political groups?

UK: Labour [Party] attacked over mailshot to cancer patients

April 11th, 2010

UK patients are outraged over whether the government NHS (National Health Service) data base was used to find individual cancer patients and pressure them...

DNA Destruction

March 9th, 2010

In the weeks before state health officials destroyed more than 5 million newborn blood samples they had stored without consent, privacy advocates, parents and...

Re-Identification. From Netflix to Health Records.

October 17th, 2009

Today’s NY Times story points out the FACT that is very easy to re-identify supposedly “de-identified” information. Singer starts with how the...

On HealthDataRights.org and their Declaration

June 23rd, 2009

HealthDataRights.org supports only ACCESS to personal health data–which is a no-brainer and a right Americans have always had. The stimulus bill makes clear that...

Genomes: Behold or Beware

December 9th, 2008

Patients whose physicians “collaborate” with genetic testing corporations should beware. Today, Navigenics and all genetic testing businesses can legally sell genomic data. There is...

DNA profiles blocked from public access

August 29th, 2008

Health agency takes down online databases after a study reveals new analysis could confirm identities.