Re: The Internet is a surveillance state

In response to the CNN article by Bruce Schneier: The Internet is a surveillance state

Bruce Schneier is wrong. Privacy is not over — the public is just now learning how invasive Internet technology, tech corporations, and government really are, and that they ACT to protect and maintain the US surveillance economy. When enough citizens tell Congress and the President to stop, this privacy disaster will stop.

The public is just beginning to WAKE UP. Today is the start of privacy in the Digital Age in the US, not the end.

It’s a lie that people happily give up privacy for “targeted ads” — tech giants like Google, Facebook, etc. have PREVENTED us from having apps and tools that enable privacy (ie, our right TO control personal information online). We have NO choices because government and the data mining industry have prevented us from having meaningful choices.

Signs of intelligent life in the Universe:

  • Attend or watch the 3rd International Summit on the Future of Health Privacy (its free). The EU Data Protection Supervisor will keynote and so will the US Chief Technology Officer—-the stark differences between US and EU data protections will be discussed—register at: http://www.healthprivacysummit.org/d/vcq3vz/4W
  • SnapChat—millions of free downloads of an app that shows people want technology that gives THEM control over their data: single use of info (a picture in this case) and the ability to delete info. See: http://patientprivacyrights.org/2013/02/snapchat-and-the-erasable-future-of-social-media/
  • A recent Pew Research Center study found smartphone users are taking action to protect their privacy:
  • The default for Microsoft’s Windows 8 browser is ‘Do Not Track’
    • Microsoft’s Chief Privacy Officer Brendon Lynch said a recent company study of computer users in the United States and Europe concluded that 75 percent wanted Microsoft to turn on the Do Not Track mechanism. “Consumers want and expect strong privacy protection to be built into Microsoft products and services.”
    • See more in the New York Times article: Do Not Track? Advertisers Say ‘Don’t Tread on Us’

DONATE to help Latanya Sweeney and Patient Privacy Rights build a health data map—-we MUST prove that thousands of hidden data users are stealing, using , and selling our personal health data: http://patientprivacyrights.org/donate/

SEE Latanya describe thedataMap at: http://patientprivacyrights.org/thedatamap/
This is the beginning of privacy, the war has just begun.

HIPAA Omnibus: Gaps In Privacy? — Interview with Deborah C. Peel, MD

Although the HIPAA Omnibus Rule is a step in the right direction for protecting health information, the regulation still leaves large privacy gaps, says patient advocate Deborah Peel, M.D.

HIPAA Omnibus finally affirmed that states can pass laws that are tougher than HIPAA, and that’s really good news because HIPAA is so full of flaws and defects that we are concerned that what is being built and funded will not be trusted by the pubic,” Peel says in an interview with HealthcareInfoSecurity during the 2013 HIMSS Conference.

Listen to this interview and read the full article here.

theDataMap™

theDataMap™ is an online portal for documenting flows of personal data. The goal is to produce a detailed description of personal data flows in the United States.

A comprehensive data map will encourage new uses of personal data, help innovators find new data sources, and educate the public and inform policy makers on data sharing practices so society can act responsibly to reap benefits from sharing while addressing risks for harm. To accomplish this goal, the portal engages members of the public in a game-like environment to report and vet reports of personal data sharing. More…

Members of the public sign-up to be Data Detectives and then work with other Data Detectives to report and vet data sharing arrangements found on the Internet. Data Detectives are responsible for content on theDataMap™.

See the debut of theDataMap™ from the “Celebration of Privacy” during the 2nd International Summit on the Future of Health Privacy here: