Re: Open data is not a panacea
December 30th, 2012
This story is a much-needed tonic to the heavy industry and government spin promoting ONLY the benefits of "open data" without mentioning the harms.
What could your health records reveal? Take control. Protect your privacy, liberty and opportunities.
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Re: Big Changes Coming in EU Privacy Law
February 6th, 2012
When will the U.S. realize informed consent is key? The new EU Privacy Law leads the field.
Re: Web site helps people profit from information collected about them
June 26th, 2011
“Individuals should be in control of the data and decide who gets to use it, not companies,” says Shane Green, president of Personal.
Holes in the fence?
November 22nd, 2010
In an era of expanding electronic interchange, privacy protections are being put to the test
Privacy advocates fear massive fed health database
November 5th, 2010
U.S. Office of Personnel Management wants to collect data from three health programs
Coalition Urges HHS To Restore Patient Control Over Access to Health Data NOW
September 14th, 2010
Now is the time to restore Americans' rights to control personal health information. Electronic health systems and data exchanges should work the way patients...
Consumer Advocate: Patient Consent Vital
September 3rd, 2010
Deborah Peel, M.D., founder of Patient Privacy Rights, on protecting the privacy of healthcare information.
Indian Tribe Wins Fight to Limit Research of Its DNA
April 21st, 2010
This is a strong example of how patients are willing to opt in to certain research, but will not tolerate secondary uses of their...
DoD does WHAT?
December 24th, 2008
It is fascinating that the DoD clearly believes it owns and can use the personal health information of 12 million active duty military personnel...
Electronic Health Records wired for abuse
March 29th, 2008
“Oops! They did it to Britney again.” No, it’s not a song parody, but a reflection of the poor state of American health privacy...