This is a collection of relevant presentations or handouts regarding health privacy courtesy of Patient Privacy Rights, the Coalition for Patient Privacy, or Friends of Patient Privacy Rights. Please email us if you are looking for a specific presentation and cannot locate it here. You can find presentations by friends of Patient Privacy Rights here.

Courtesy of Patient Privacy Rights

Health Information Exchanges: Everything You Need to Know — Will Patients Trust Physicians in the Digital Age?, November 3, 2011
Deborah Peel, MD gives this presentation on HIEs for the Travis County Medical Society’s November 3, 2011 “Business of Medicine” Dinner
View a .PPTX of the Presentation

Across the Pond: An Update on Health Privacy and Health Data Security. How are American patients faring?, October 20, 2010
Deborah Peel, MD presents the Health IT and privacy situation in the United States at a security seminar at the University of Cambridge
View a .PDF of the Presentation

Information Technology: New Horizons in Health Care, October 12, 2010
Deborah Peel, MD presents on Health IT in the US at the 2010 World Health Summit in Berlin.
View a .PDF of the Presentation

Who Will Control Your Health Information?, September 20, 2010 A presentation to Texas Independent Health Insurance Agents by Deborah Peel, MD
View a .PDF of the presentation
View a .PPT of the presentation

Information Security, Putting the Pieces Together… the intersection of privacy and security, September 16, 2010
Deborah Peel, MD presents as the keynote speaker at the VA 2010 Security Workshop
View a .PDF of the presentation
View a .PPTX of the presentation

Patient Expectations for Health IT: Control over Health Records Privacy Solutions for HIE, May 11, 2010
Deborah Peel, MD testified before the Texas Public Health Committee which was discussing the implementation of HIT.
View a PDF of the briefing
View a PDF of the presentation
View the additional slides on Data Mining

Innovation in Health Care Delivery Systems: Maintaining Quality and Reducing Costs Through Management and Information Technology, April 29-30, 2010
Patient Control of Health Records
View Dr. Deborah Peel’s presentation given at the University of Texas at Austin or view more on their website.

Bridging the Disconnect between Healthcare Providers and Information Technologists, April 9, 2010
Privacy & Security – The Patient’s Perspective
A presentation given by Deborah C. Peel at Claremont Graduate University

HITECH & HIPAA: Compliance Management, March 25-26, 2010
Do Patients Have a Right to Health Information Privacy? Why You Should Care
Founder and Chair, Dr. Deborah Peel, gave this presentation at the World Congress 2nd Annual Leadership Summit in Washington, DC

Exploring Privacy: An FTC Roundtable Discussion, March 17, 2010
Dr. Deborah Peel was part of a panel discussion put together by the Federal Trade Commission exploring the privacy challenges surrounding health information technology.
Watch the video or read the session transcript

“Let Patients Drive HIT” February 28, 2010
Founder and Chair Deborah Peel, MD speaks at HiMSS 10 about the importance of letting patients drive health care IT development. Play this podcast

Testimony before the Arizona Senate, February 16, 2010
SB 1258 Consent Amendment: Opt-in vs. Opt-out Electronic Consent Solutions
Deborah Peel, MD Testified before the Arizona State Senate showing flaws in Opt-out systems.
Additional Information on HIE & Consent

Healthcare Privacy & Security After HITECH and Health Reform, February 2-5, 2010
What are the Concerns of Privacy Advocates and How to Respond
Deborah Peel, MD presented at the 18th National HIPAA Summit in Washington, DC using these slides.

Living Online: Privacy & Security Issues in a Digital Age, November 3, 2009
Deborah Peel, MD spoke on a panel with three others at the American Constitution Society’s Conference.
Watch Video of this Panel
Learn More

Testimony before Health IT Policy Committee, September 18, 2009
Founder & Chair Deborah Peel, MD testified before the Health IT Policy Committee on HIT & Privacy
See written testimony

Behavioral Advertising or Invasion of Privacy?, November 20, 2008
Deborah Peel compares Behavioral Advertising to Drug Marketing and Privacy
View Presentation

Beyond Security: What We Can Expect to See in Patient Privacy Issues and Challenges From an Obama or McCain Administration, October 30, 2008
Presentation given by Deborah Peel at the Institute for Behavioral Health Informatics
View Presentation

Ohio Summit Keynote Address, October 27, 2008
Protecting Privacy While Expanding HIT & HIE
Presentation by Deborah Peel, MD

International Pharmaceutical Federation (FIP) Congress in Basel, Switzerland, September 3, 2008
Patients in Control of Their Records – Uploading Medical Records to the Web: Threats and Opportunities
Presentation by Deborah Peel, MD

University of Cambridge Computer Laboratory Security Seminar Series, September 5, 2008
Electronic Health Records: which is worse, the UK System or the US System?

4th Annual Government Health IT Conference, June 13, 2008
Progress with Privacy

TEPR Conference – Towards the Electronic Patient Record, May 21, 2008
Voluntary Universal Identifier – Pipe Dream or Panacea?

Alliance for Health Reform and Divided We Fail, February 29, 2008
Health Information Technology and Privacy: Is There a Path To Consensus?

• Presentation at the HIMSS 2008 Conference: “The Privacy Imperative in Healthcare IT“, February 26, 2008
  • Listen along while viewing slides
• Plenary Keynote Address at the Institute for Behavioral Health Informatics October 2007
• Presentation at the World Congress in November 2007
• The Zones of Privacy

Courtesy of Friends of Patient Privacy Rights

• What Two Decades of Surveys Tell Us About Privacy and HIT Today, Presentation by Alan Westin, Keynote Address for Getting IT Right: Protecting Patient Privacy Rights in a Wired World, June 13, 2011
• Putting the “I” In Health IT Privacy & Security, Presentation by Joy Pritts of HHS-ONC, for Getting IT Right: Protecting Patient Privacy Rights in a Wired World, June 13, 2011
• Toward Segmentation, PowerPoint prepared by Lee Tien, Electronic Frontier Foundation, for Getting IT Right: Protecting Patient Privacy Rights in a Wired World, June 13, 2011
• Testimony before the 21st Century Healthcare Caucus Roundtable, Courtesy of Latanya Sweeney
  Written Testimony
  Slides
• SXSW 2010 Interactive Festival: Opening Remarks: Privacy & Publicity. Dana Boyd explains what privacy is and why it is important
• Presentation by Katherine L. Ball, MD, MSc & William A. Yasnoff, MD, PhD, FACMI: Averting the Collision: Privacy Doctrine & Health Information Exchange, from the e-Health Initiative in Washington, DC, December 5, 2008
  • Read their paper for submission
• Stuart Shapiro’s Presentation, From Privacy-Enabling Technology to Privacy-Enabled Architecture, at The MITRE Corporation, August 20, 2008
• Preview Dr. Peel’s speech at the HIMSS February 26, 2008 Conference
• Altarum study of PHRs commissioned by ONCHIT: Review of the Personal Health Record (PHR) Service Provider Market — Privacy and Security
• Improving Health Care: Why a Dose of IT May Be Just What the Doctor Ordered
• Dr. Alan Westin’s IOM Project Survey Findings on Health Research & Privacy