You can view Power Points and other materials used by PPR in a number of venues, as well as presentations by others advocating patient privacy. Visit our Presentations Page to see more.


Visit our Interview Page to see an archive of interviews Patient Privacy Rights took part in. Here are just a few:

Charting a New Course, September 13, 2009
CBS Sunday Morning covers electronic medical records, and Ashley Katz reminds all that privacy is a must.
Read more and Watch Video

Pushing E-Health Records, April 22, 2009
In this On Point Interview with Tom Ashbrook, Deborah Peel, MD explains that with the benefits of EHRs come the privacy risks.
Read more and listen to this interview

Hospitals consider paper-free records, April 10, 2009
Ashley Katz, in an interview with Marketplace, weighs the efficiency and easy of medical records against the real privacy concerns that lead to discrimination based on health.
Listen to this interview
Read this interview

See more

Living Online: Privacy and Security Issues in a Digital Age

Our lives are increasingly lived online. A large number of Americans routinely exchange information in cyberspace for personal, business, and other purposes. What privacy and security issues present themselves in this relatively new and increasingly ubiquitous space? What particular privacy concerns might apply when specific entities, such as the government, hold or process our information? What particular considerations might apply when the information being transmitted is particularly sensitive, such as health care information or financial information? How do privacy, security, and information ownership concerns function when information is being exchanged on social networking sites?

The November 3, 2009 event featured a lunchtime keynote address by Christopher N. Olsen, the Assistant Director in the Division of Privacy and Identity Protection at the Federal Trade Commission.

A panel discussion was held from 1 – 2:30 pm and featured:

  • Moderator, Jeffrey Rosen, Professor of Law at George Washington University and Legal Affairs Editor for The New Republic
  • Deborah C. Peel, MD, Founder and Chair, Patient Privacy Rights; Chair, Coalition for Patient Privacy
  • Lillie Coney, Associate Director, Electronic Privacy Information Center; Coordinator, Privacy Coalition
  • Alan Davidson, Director of Public Policy, Google

Here is the Video of the Panel:

Tuesday, November 3, 2009
11:30 am – 2:30 pm
Center for American Progress
1333 H. Street NW, 10th Floor
Washington, DC 20005

The phone that feels the flu before you do (AP)

The “Zicam Cold & Flu Companion” warns Google phone users of the number of people who are sneezing and shaking in their zip code.

Matrixx Initiatives Inc., an Arizona company that makes of over-the-counter cold and flu remedies under the Zicam brand, released a program this week for the T-Mobile G1, also known as the “Google phone,” that warns the user how many people in an area are sneezing and shaking with winter viruses.

The “Companion” is available for free from the Android Marketplace, and will soon be available on the iPhone. Google Inc., which created the G1’s operating system, launched its own state-by-state Web-based flu tracker recently.

Google’s New Flu Tracking Tool Raises Concerns About Internet Users’ Privacy, Experts Say

In an iHealthBeat Special Report by Deirdre Kennedy, patient privacy advocates express concerns about Google’s new online flu tracking tool.
The tool, called Flu Trends, tracks search terms entered by Internet users to help U.S. public health officials identify more quickly potential regional outbreaks. Google says it has found a close relationship between the number of people who search for flu-related topics online and how many people actually have the flu.
However, privacy advocates argue that Internet user information stored by Google and other search engines could prejudice insurers, employers, lenders or others who might gain access to it.
The Special Report includes comments from:
Lillie Coney, associate director of the Electronic Privacy Information Center;
Deborah Peel, founder of Patient Privacy Rights; and
Lisa Winston, chief epidemiologist at the University of California-San Francisco (Kennedy, iHealthBeat, 11/19).