Coalition Goals and Activities

      • Monitor the Health IT Policy Committee & Standards Committees and provide summaries and action item recommendations for every meeting.
      • Make recommendations to the relevant federal committees and regulatory agencies, Office of National Coordinator for Health IT, Health and Human Services, Federal Trade Commission and others.
        • Activate members and groups to advocate for privacy‐enhancing technologies, laws, and policies.
      • Empower individuals to protect their personal health information and provide them   with tangible, user‐friendly tools.
      • Ensure clear and consistent communication among Coalition partners.
      • Provide a Rapid Response Kit for media and decision makers.
      • Engage private sector to adopt innovative privacy‐enhancing technologies and policies and promote a strong culture of protecting individual privacy regardless of regulations and law.
      • Tap into technical expertise and collaborate with industry and the marketplace to provide privacy solutions for Health IT products and systems.

The following Patient Privacy Principles should be included in all Health IT legislation:

    • Recognize that patients own their health data
    • Give patients control over who can access their electronic health records
    • Give patients the right to opt-in and opt-out of electronic systems
    • Give patients the right to segment sensitive information
    • Require audit trails of every disclosure of patient information
    • Require that patients be notified of suspected or actual privacy breaches
    • Require breach notification, privacy safeguards and whistleblower protections, including meaningful enforcement of privacy rights
    • Provide meaningful penalties and enforcement for privacy violations
    • Require that health information disclosed for one purpose may not be used for another purpose without informed consent
    • Insure that consumers can not be compelled to share electronic health records to obtain employment, insurance, credit, or admission to schools
      Deny employers access to employees’ medical records
    • Preserve stronger privacy protections in state laws