2014 Health Privacy Summit Agenda

 

Controlling Your Personal Health Information: Now Is The Time

 

DAY 1 – WEDNESDAY, JUNE 4, 2014

Location: Georgetown Law Center


8:00-8:30 am

Registration  |  Light Breakfast & Coffee

8:30 – 9:00 am

Opening Session

  • Professor Lawrence Gostin, Director | O’Neill Institute for National and Global Health Law, Georgetown University
  • Dr. Deborah C. Peel, Founder and Chair | Patient Privacy Rights
  • Shahid Shah, Master of Ceremonies President & CEO | Netspective Communications

9:00 am – 9:45 am

Keynote: “An Ethical Duty to Protect Your Own Health Privacy”

  • Anita Allen, Vice Provost for Faculty |  University of Pennsylvania Law School

9:50 am – 10:40 am

Session 1: Privacy, Big Data, and Mobile: Technologies Operating Outside HIPAA Protection

Moderator

  • Nicolas Terry | Indiana University McKinney School of Law

Speakers

  • Andrea M. Matwyshyn | The Wharton School of the University of Pennsylvania
  • Kirk J. Nahra | Wiley Rein LLP
  • Frank Pasquale | University of Maryland Carey School of Law
  • Kathryn Serkes | Doctor Patient Medical Association

10:45 am – 10:55 am

Break

10:55 am – 11:40 am

Keynote: “Privacy In Times of Big Data”

  • Peter Schaar, Chairman | European Academy for Freedom of Information and Data Protection (EAID), Germany

11:40 am – 12:30 pm

Lunch

12:30 pm – 1:20 pm

Session 2: Title TBD (Topic: Patient Access – BB+)

Moderator

  • Peter Levin | Center for a New American Security

Speakers

  • Adrian Gropper | Patient Privacy Rights
  • Ron Walters | MD Anderson*

1:25 pm – 2:10 pm

Keynote: “A Conversation with Karen DeSalvo” moderated by Shahid Shah

  • Dr. Karen DeSalvo, National Coordinator for Health Information Technology |  US Department of Health & Human Services
  • Shahid Shah, CEO | Netspective Communications

2:10 pm – 2:25 pm

Break

2:25 pm – 3:15 pm

Session 3: Protecting Health Information in Research, Mental Health, and Genetics

Moderator

  • Mark Rothstein | University of Louisville School of Medicine

Speakers

  • Deven McGraw | Center for Democracy & Technology
  • Alison Rein | Academy Health
  • Sonia Suter | George Washington University Law School

3:20 pm – 4:10 pm

Breakout Sessions (TBD)

4:10 pm – 4:25 pm

Break

4:25 pm – 5:15 pm

Session 4: Where is the Data/Data Map/Vendor/Sharing Data (HIEs), Medical Home?

Moderator

  • David Staggs | Jericho Systems

Speakers

  • Tim Andrews | Booz Allen Hamilton
  • Shaun Grannis | Regenstrief Institute, Inc. & Indiana University School of Medicine
  • Robert Tagalicod | Office of E-Health Standards and Services, CMS
  • Mariann Yeager | Healtheway

5:20 pm – 6:00 pm

Keynote: “A Conversation with Jeremy Grant” moderated by Latanya Sweeney

  •  Jeremy Grant, Senior Executive Advisor for Identity Management | National Institute of Standards and Technology (NIST)
  • Latanya Sweeney, Chief Technologist | Federal Trade Commission (FTC)*

6:00 pm

Day 1 Closing Remarks

  • Dr. Deborah C. Peel, Founder and Chair | Patient Privacy Rights

 

CELEBRATION OF PRIVACY – WEDNESDAY, JUNE 4, 2014

Location: Hyatt Regency on Capitol Hill (Next to Georgetown Law Center)


6:30 – 8:30 pm

2014 Louis D. Brandeis Privacy Awards Ceremony & Reception

DAY 2 – THURSDAY, JUNE 5, 2014

Location: Georgetown Law Center


8:30 am – 9:00 am

Light Breakfast & Coffee

9:00 am – 9:05 am

Welcome, Day 2

  • Dr. Deborah C. Peel, Founder and Chair | Patient Privacy Rights

9:05 am – 9:55 am

Debate: That Individuals Should Maintain Their Own Health Data – A Debate Between Kimberly Gray, Chief Privacy Officer, Global, IMS Health, and Michelle DeMooy, Senior Associate for National Priorities, Consumer Action Many individuals, health reformers, and privacy advocates believe that individuals should maintain their own health data.  But, others in the health establishment say that it just won’t work: that most people aren’t interested enough, or can’t manage their data, or will end up holding back research. Listen as Kimberly Gray and Michelle DeMooy debate the merits of each point.

Moderator

  • Andy Oram | O’Reilly Media

10:00 am – 11:00 am

Session 5: Surveillance of Healthcare Data: Who’s Looking? What Data Are They Using? What Happened To Fair Information Practices?

Moderator

  • Deborah Hurley | Hurley

Speakers

  • Kaliya Hamlin | Personal Data Ecosystem Consortium
  • Paul Hattis | Tufts University Medical School
  • Nathan Wessler | ACLU

11:00 am – 11:15 am

Break

11:15 am – 12:15 pm

Session 6: Health Data Exchange – What Is It And What Should You Do? Opt-In or Opt-Out?

Moderator

  • Corinne Carey | NYCLU

Speakers

  • Mark Jacobs | Delaware Health Information Network*
  • John ‘Mike’ Davis | Department of Veterans Affairs*
  • Helen Oscislawski | Oscislawski LLC

12:30 – 1:30 pm

Luncheon (Location: Hyatt Regency on Capitol Hill)

Luncheon Keynote: “The Search for the Mystery Woman and Other Naked Truths Learned from Re-Identification”

  • Adam Tanner, Fellow | Harvard University’s Institute for Quantitative Social Science

Summit Closing Remarks

  • Dr. Deborah C. Peel, Founder and Chair | Patient Privacy Rights

 

 


Agenda is subject to change. Please stay tuned for more details. * Invited Please click here to register for the 2014 Summit!