2014 Health Privacy Summit Agenda

 

Controlling Your Personal Health Information: Now Is The Time

 

DAY 1 – WEDNESDAY, JUNE 4, 2014

Location: Georgetown Law Center


8:00-8:30 am

Registration  |  Light Breakfast & Coffee – Sponsored by Park Legal LLC

8:30 – 9:00 am

Opening Session

  • Professor Lawrence Gostin, Director | O’Neill Institute for National and Global Health Law, Georgetown University
  • Dr. Deborah C. Peel, Founder and Chair | Patient Privacy Rights
  • Shahid Shah, Master of Ceremonies President & CEO | Netspective Communications

9:00 am – 9:45 am

Keynote: “An Ethical Duty to Protect Your Own Health Privacy”

  • Anita Allen, Vice Provost for Faculty |  University of Pennsylvania Law School

9:50 am – 10:50 am

Session 1: Privacy, Big Data, and Mobile: Technologies Operating Outside HIPAA Protection

Moderator

  • Nicolas Terry | Indiana University McKinney School of Law

Speakers

  • Andrea M. Matwyshyn | The Wharton School of the University of Pennsylvania
  • Kirk J. Nahra | Wiley Rein LLP
  • Frank Pasquale | University of Maryland Carey School of Law
  • Kathryn Serkes | Doctor Patient Medical Association

10:50 am – 11:10 am

Break

11:10 am – 11:55 am

Keynote: “Privacy In Times of Big Data”

  • Peter Schaar, Chairman | European Academy for Freedom of Information and Data Protection (EAID), Germany

12:00 pm – 1:00 pm

Lunch

1:00 pm – 1:55 pm

Session 2: Protecting Health Information in Research, Mental Health, and Genetics

Moderator

  • Mark Rothstein | University of Louisville School of Medicine

Speakers

  • Deven McGraw | Manatt, Phelps & Phillips, LLP
  • Alison Rein | Academy Health
  • Sonia Suter | George Washington University Law School
  • J.J. Nietfeld | University Medical Center Utrecht

2:00 pm – 2:45 pm

Keynote: “A Conversation with Jeremy Grant” moderated by Adam Tanner

  •  Jeremy Grant, Senior Executive Advisor for Identity Management | National Institute of Standards and Technology (NIST)
  • Adam Tanner, Fellow | Harvard University’s Institute for Quantitative Social Science

2:45 pm – 2:55 pm

Break

2:55 pm – 3:50 pm

Breakout Sessions

1a – Healthcare Laws – U.S. State and International Perspectives

Moderator

  • Debra Diener | Privacy and Identity Management Consultant

Speakers

  • G.S. Hans | Center for Democracy and Technology
  • Joanne McNabb | California Department of Justice, Office of the Attorney General

1b – Privacy and the New Health Care Models: Real World Problems

Moderator

  • Cliff Baker | Meditology Services

Speakers

  • Leo Dittemore | Healthcare Partners
  • Omar Khawaja | Highmark
  • Karen Bell | JBS International

1c –Health Data Exchange – What Is It And What Should You Do? Opt-In or Opt-Out?

Moderator

  • Corinne Carey | NYCLU

Speakers

  • John “Mike” Davis | VHA
  • Helen Oscislawski | Oscislawski LLC
  • Randy Farmer | Delaware Health Information Network

3:50 pm – 3:55 pm

Break

3:55 pm – 4:50 pm

Session 3: Do You Know Where Your Health Data Is?

Moderator

  • David Staggs | Jericho Systems

Speakers

  • Shaun Grannis | Regenstrief Institute, Inc. & Indiana University School of Medicine
  • Mariann Yeager | Healtheway
  • Damon Davis | Office of the National Coordinator for Health Information Technology
  • Lynda E. Rowe | Booz Allen Hamilton

4:55 pm – 5:40 pm

Keynote: “A Fireside Chat with Karen DeSalvo” moderated by Shahid Shah

  • Dr. Karen DeSalvo, National Coordinator for Health Information Technology |  US Department of Health & Human Services
  • Shahid Shah, CEO | Netspective Communications

5:40 pm – 5:45 pm

Day 1 Closing Remarks

  • Dr. Deborah C. Peel, Founder and Chair | Patient Privacy Rights

 

CELEBRATION OF PRIVACY – WEDNESDAY, JUNE 4, 2014

Location: Hyatt Regency on Capitol Hill (Next to Georgetown Law Center)


6:00 – 8:00 pm

2014 Louis D. Brandeis Privacy Awards Ceremony & Reception

Awardees:

  • Latanya Sweeney, Chief Technologist | Federal Trade Commission
  • Peter Schaar, Chairman | European Academy for Freedom of Information and Data Protection (EAID), Germany

DAY 2 – THURSDAY, JUNE 5, 2014

Location: Georgetown Law Center


8:30 am – 9:00 am

Light Breakfast & Coffee – Sponsored by IMS Health

9:00 am – 9:05 am

Welcome, Day 2

  • Dr. Deborah C. Peel, Founder and Chair | Patient Privacy Rights

9:05 am – 9:50 am

Debate: That Individuals Should Maintain Their Own Health Data – A Debate Between Kimberly Gray, Chief Privacy Officer, Global, IMS Health, and Michelle DeMooy, Senior Associate for National Priorities, Consumer Action Many individuals, health reformers, and privacy advocates believe that individuals should maintain their own health data.  But, others in the health establishment say that it just won’t work: that most people aren’t interested enough, or can’t manage their data, or will end up holding back research. Listen as Kimberly Gray and Michelle DeMooy debate the merits of each point.

Moderator

  • Andy Oram | O’Reilly Media

9:55 am – 10:45 am

Session 4: Surveillance of Healthcare Data: Who’s Looking? What Data Are They Using? What Happened To Fair Information Practices?

Moderator

  • Deborah Hurley | Hurley

Speakers

  • Kaliya Hamlin | Personal Data Ecosystem Consortium
  • Paul Hattis | Tufts University Medical School
  • Nathan Wessler | ACLU

10:45 am – 11:00 am

Break

11:00 am – 12:00 pm

Session 5: Assuring An Individual’s Access to Her Own Health Records

Moderator

  • Peter Levin | Center for a New American Security

Speakers

  • Adrian Gropper | Patient Privacy Rights
  • Ron Walters | MD Anderson
  • Joan Antokol | Park Legal LLC
  • Joy Pritts | Office of the National Coordinator for Health Information Technology

12:15 – 1:30 pm

Luncheon (Location: Hyatt Regency on Capitol Hill)

Luncheon Keynote: “The Search for the Mystery Woman and Other Naked Truths Learned from Re-Identification”

  • Adam Tanner, Fellow | Harvard University’s Institute for Quantitative Social Science

Summit Closing Remarks

  • Dr. Deborah C. Peel, Founder and Chair | Patient Privacy Rights

 

 


* Invited
Agenda is subject to change. Please stay tuned for more details.

Please click here to register for the 2014 Summit!