2013 Health Privacy Summit Videos



Opening and Introduction

Lawrence O. Gostin, JD, O’Neill Institute for National & Global Health Law and Deborah C. Peel, MD, Patient Privacy Rights


Opening Keynote: “A Health Check on Data Privacy”

Peter Hustinx, European Data Protection Supervisor


Session 1: The Value of Data OUTSIDE of Healthcare

Moderator: Natasha Singer, New York Times

Panelists: Michelle DeMooy, Consumer Action; Ranieri Guerra, MD, Italian Embassy; Cora Han, FTC; David “Doc” Searls, Harvard University; David Wiggin, Teradata


Presentation of the DataMap

Latanya Sweeney, PhD, Harvard University Data Privacy Lab


Keynote: “The Constitution & Privacy: Why the Supreme Court Cares”

Marc Rotenberg, JD, Executive Director of the Electronic Privacy Information Center (EPIC)

Discussant: Ted Ruger, University of Pennsylvania Law School


Day 1 Breakout Sessions

Session 1A: Does the U.S. Need E.U. Data Protections? Should U.S. Companies Meet E.U. Requirements?

Moderator: Frank Pasquale, JD, Seton Hall University

Panelists: Lara Ballard, JD, U.S. Department of State; Phil Booth, medConfidential; Beatrice Covassi, Delegation of the E.U.; William Pewen, PhD, Marshall University


Session 1B: What Is the Value of Health Data to Organized Crime?

Moderator: Jordan Robertson, Bloomberg News

Panelists: Bob Gregg, ID Experts; Ron Ross, PhD, National Institute of Standards & Technology; Aaron Titus, JD, Identity Finder


Session 1C: Cultural Perspectives on Religion and Privacy

Moderator: Pablo Molina, Georgetown University

Panelists: Reverend J. Michael Little, JD, Friendship Baptist Church; Aasim Padela, MD, University of Chicago; Gen Kelsang

Varahi, Vajrayogini Buddhist Center


Session 1D: Patient Data in the Cloud: How Is It Used? How Is It Protected?

Moderator: Debra Diener, JD, Privacy & Identity Management Consultant

Panelists: Adrian Gropper, MD, Patient Privacy Rights; Kim Little, Lexis Nexis; John McDaniel, NetApp; Maneesha Mithal, JD, Federal Trade Commission


Session 2: Big Data, Big Problems, Big Solutions?

Moderator: Deborah Hurley, JD, Founder, Hurley

Panelists: Peter Bootsma, MD, Royal Netherlands Embassy; Deborah Golden, Deloitte; David Jacobs, JD, Electronic Privacy Information Center (EPIC); Mark Luker, PhD, NITRD; Latanya Sweeney, PhD, Harvard University Data Privacy Lab


Keynote Presentation

Todd Park, U.S. Chief Technology Officer, Office of Science & Technology Policy


Celebration of Privacy

Louis D. Brandeis Award Winner Peter J. Hustinx

Award presented by Deborah Hurley, JD

Louis D. Brandeis Award Winner Mark A. Rothstein

Award presented by Lawrence O. Gostin


DAY 2 – THURSDAY, JUNE 6, 2013


Opening Keynote: “Information is Powerful Medicine”

Leon Rodriguez, Director of the Office for Civil Rights, HHS


Session 1: Patient Story About Loss of Privacy

Scott Monteith, MD


Session 2: The Value of Health Data INSIDE Healthcare

Moderator: Joseph Conn, ModernHealthcare.

Panelists: David Chao, PhD, The Advisory Board; Barbara Evans, JD, University of Houston Health Law & Policy Institute; Anil Jain, MD, Explorys; David Muntz, HHS/ONC; Kathryn Serkes, Doctor Patient Medical Association


Day 2 Breakout Sessions


Session 2A: CIOs and Privacy

Moderator: Cliff Baker, Meditology Services

Panelists: M. Peter Adler, JD, SRA International, Inc.; Leo Dittemore, Healthcare Partners; Omar Khawaja, Verizon; Bill Turner, Allium Healthcare


Session 2B: The Omnibus Privacy Rule – Are We Done Now?

Moderator: Nicolas P. Terry, JD, Indiana University McKinney School of Law

Panelists: Susan McAndrew, JD, Office for Civil Rights Sherri Morgan, JD, National Association of Social Workers; Brian Selfridge, CISSP, Meditology Services; Candice Weatherly, JD, CenterLight Health System


Session 2C: Newtown and the Privacy of Psychiatric Data

Moderator: H. Westley Clark, MD, Substance Abuse & Mental Health Services Administration

Panelists:Demelza Baer, JD, American Civil Liberties Union; James C. Pyles, JD, Powers Pyles Sutter & Verville; Patricia A. Rehmer, Department of Mental Health & Addiction Service


Session 2D: Consent for Research – Do We Need It?

Moderator: Ron Walters, MD, MD Anderson Cancer Center
Panelists: Phil Booth, medConfidential; Kelly Caine, PhD, Clemson University School of Computing; Adrian Gropper, MD, PPR


Luncheon Keynote: “Louis Brandeis and the Origins of a Right to Privacy”

Melvin Urofsky, PhD – Biographer of Louis D. Brandeis