2012 Health Privacy Summit – Agenda

DAY 1 – WEDNESDAY, JUNE 6th, 2012 
 Time Session
Welcome & Introductions
8:15 am – 8:25 am
Lawrence O. Gostin, JD, LLD (Hon) & Deborah C. Peel, MD
8:25 am – 9:15 am
” Creating a Culture of Privacy & Security Awareness”
Farzad Mostashari,
MD, HHS, National Coordinator for Health IT
9:20 am – 9:45 am
Patient Stories About Privacy Loss
Session 1
9:50 am – 10:55 am
“First Do No Harm. Does Technology Harm Patients?”
Q & A
10:55 am – 11:10 am  Break
Session 2
11:10 am – 12:20 pm
“Is There Too Much or Too Little Regulation? Will States or Congress Regulate?”
Q & A
12:25 pm – 1:15 pm Lunch 
Session 3
1:20 pm – 2:30 pm
“Big Data–Finding the Healthy Balance Between More Information and More Risks”
Q & A
2:30 pm – 2:45 pm  Break
Session 4
2:45 pm – 3:45 pm
Introduction to Summit Workgroups:

  • Technology Solutions
  • Consumer Education
  • Principles
Session 5
3:50 pm – 4:35 pm
“Best Privacy Technologies of 2012”
Demonstrations of successful, implemented technologies that enhance patient control over personal health information.
4:40 pm – 5:20 pm
“Health Privacy – Lessons from Europe”
Ross Anderson, PhD, University of Cambridge, UK
 Wrap Up David Hilgers, JD & Deborah C. Peel, MD



6:00 – 8:00 pm “Celebration of Privacy” — Cocktail Reception
Located at the Washington Court Hotel Immediately following the Summit

  • The First Louis D. Brandeis Privacy Awards

DAY 2 – THURSDAY, JUNE 7th, 2012
8:00 am – 8:10 am
Introduction to Day 2
Opening Session
8:10 am – 9:10 am
“Docs and EHRs. How Is The Physician-Patient Relationship Affected?”
Issue Sessions #1
9:15 am – 10:10 am
See 5 Issue Sessions Below
10:10 am – 10:25 am  Break
Issue Sessions #2
10:25 am – 11:20 am
Repeat of Previous Sessions. See 5 Issue Sessions Below
Work Group Sessions
11:25 am – 12:15 pm
Proposals for Next Year, Welcoming New Members

  • Technology Solutions
  • Consumer Education
  • Principles
Seated Lunch Located at The Washington Court Hotel12:30 pm – 1:40 pm Cultural Perspectives on Religion and Privacy



Session  Topic
1 “How Do Ideal Patient-Centered, Ethically-Based Health IT Systems Address Privacy?” Models of ideal, trustworthy, ethical, patient-centered health care systems will be presented followed by discussion and Q&A with the audience.
2 “Health Information Privacy and Health IT—Where are we and how did we get here?” This session will be a mini-course on state and federal health privacy laws and regulations, common law, tort law, and Constitutional decisions that shape Americans’ rights to health information privacy.
3 “HIEs: What We Know and Don’t Know, Data Segmentation, Patient-Centered Options (e.g., opt-in/opt-out)” This session will deal with actions to implement health data exchange and their effects on privacy. The panel will discuss the best/worst ways the mandate for data exchange is being implemented.
4 “Is Genetic Privacy Threatened?” Are the special protections in state and federal law effective against the use of genetic data by health insurers and employers? Is genetic data more sensitive or more valuable than other health data? The panel will explore how genetic data privacy is challenged by the collection and biobanking of samples, the sale and use of genetic data, attachment of genetic information to EHRs, and increased collection and use of genetic outside of healthcare.
5 “How do Social Media, Mobile Devices, Medical Devices and Implants, Online “Health Websites,” and Clouds Threaten Health Privacy?” The panel will discuss how new technologies, many of which are outside of the healthcare system, further erode individual control over the use personal health information.