2011 Health Privacy Summit Agenda


8:30 – 8:40

  • Robert L. Hutchings, Dean of the Lyndon B. Johnson School of Public Affairs at The University of Texas at Austin
  • Deborah C. Peel, Patient Privacy Rights
Session 1

8:45 – 9:10

 How the American Public Views Patient Privacy and Health Technology  Systems: What Ten Years of Surveys Tell Us
Session 2

9:15 – 10:10

 Contrasting Beliefs about Privacy Protection in the Digital Era
  • Moderator: Anita Allen, University of Pennsylvania Law School
  • Panel:  Ross Anderson, University of Cambridge; Nancy Barto, Arizona State Senate; Corinne Carey, NYCLU; Lisa Gallagher, HIMSS; Helen Nissenbaum, New York University; Jim Pyles, Powers, Pyles, Sutter & Verville; Jessica Rich, FTC Bureau of Consumer Protection
  • Rapporteur: Andy Oram, O’Reilly Media

20 minute coffee break 10:15 – 10:35

Session 3


 Case Studies: Finding Solutions for three urgent privacy issues
1. Consent and segmentation of data — 2010 PCAST report
  • Moderator:  Carl Gunter, University of Illinois
  • Panel: H. Westley Clark, SAMHSA; Duane Decouteau, Jericho Systems Corporation; Stephen Palmer,Office of e-Health Coordination at Texas Health and Human Services Commission; Stephanie Perrin, University of Toronto; Wes Rishel, Gartner; Lee Tien, Electronic Frontier Foundation
  • Rapporteur: Andrew Blumberg, University of Texas at Austin
2. Control of patient data — Health Information Exchanges
  • Moderator:  Barry Chaiken, former chairman HIMSS, Imprivata
  • Panel: Mike Davis, Veterans Health Administration; Michelle De Mooy, Consumer Action; Barbara Evans, University of Houston Law Center; Mark Frisse, Vanderbilt University; Joy Pritts, ONC; Michael Stearns, e-MDs
  • Rapporteur: David Wanser, Intellica
3. Secondary uses of personal health information in health databases – Implications of Sorrell vs. IMS Health
  • Moderator:  William M. Sage, The University of Texas at Austin School of Law
  • Panel:  Bridget Asay, Attorney General’s Office, Vermont; Kimberly Gray, IMS Health; Stephania H. Griffin, Veterans Health Administration; Christian Hamann, Gleiss Lutz, Germany; Latanya Sweeney, Carnegie Mellon University; John Verdi, Electronic Privacy Information Center
  • Rapporteur: Benedicte Callan, LBJ School of Public Affairs, University of Texas at Austin
Lunch Keynote

12:50 – 2:20

 “What Do Research and History Tell Us About Privacy Today?: A Conversation with  Alan Westin”
  • Keynote Discussion: Jeffrey Rosen, George Washington University; Alan Westin, Arnall Golden Gregory, Atlanta and Washington DC.
 Putting the “I” in Health IT Privacy and Security: How Consumers Can Be Part of the  Policy-Making Process
  • Remarks by Joy Pritts, ONC
Session 4

2:25 – 3:20

 Breakout Groups on Privacy and the Future of HIT

Concurrent sessions to develop problem statements, to identify research needs, to articulate actionable technical, educational and/or policy recommendations.

  • What principles and regulations should apply to the collection and use of health data? And how should they be enforced? 
Moderated by: Barry Steinhardt, Privacy International
  • Business Analytics, Data Exchange, and the Public Good, 
Moderated by:Barry Chaiken, former chairman HIMSS, Imprivata
  • Developing a Collaborative Approach – Realizing Benefits of Health Data Whilst Enabling Patient Control, 
Moderated by: Joe McCarron, Reos Partners & Brian Mulconrey, Tomorrow’s Enterprises Corporation
  • Educating the States and the Public about Health Privacy, 
Moderated by: H. Westley Clark, SAMHSA
  • Meeting the technical challenges of distributed consent and authorization
, Moderated by: Steve Steffensen, TATRC, US Army
, with Special Guest: Guido van ‘t Noordende

20 minute break 3:25 – 3:45

Session 5

3:55 – 4:50

 Looking Ahead:  The 2012 Health Privacy Agenda

Panel discussion with representatives from workgroups

  • Moderator:  David W. Hilgers, Brown McCarroll, L.L.P. &ABA Health Privacy
  • Panel: Session 4 Workgroup Moderators; David Warner, LBJ School of Public Affairs, The University of Texas at Austin; Deborah C. Peel, Patient Privacy Rights

5:00 – 6:30

 Reception for All Summit Attendees