Secretary of Health and Human Services (HHS), the Director of the Office of Civil Rights (OCR), and the National Coordinator for HIT all made very strong, pro-privacy statements at the press conference today announcing the Notice of Proposed Rulemaking (NPRM) titled: 45 CFR Parts 160 and 164, RIN: 0991-AB57, Modifications to the HIPAA Privacy, Security, and Enforcement Rules under the Health Information Technology for Economic and Clinical Health Act.
Signaling a major shift in direction for the Administration and HHS’ Secretary Sebelius said “It’s important to understand this announcement of the NPRM…. is part of an Administration-wide commitment to make sure no one has access to your personal information unless you want them to.”
Patient Privacy Rights heartily congratulates the Administration and Sec. Sebelius for this new pro-privacy, patient-centered approach to personal health information (PHI).
We applaud Secretary Sebelius’ clear acknowledgment that health IT systems should empower patients to control PHI. Putting patients in control of PHI is the only route to prevent wasting billions in stimulus funds on HIT systems that destroy privacy and to stop the theft, misuse, and sale of PHI in today’s primitive HIT systems and data exchanges.
During her remarks, OCR Director Verdugo said, “the benefits of HIT will only be fully realized if health information is kept private and secure at all times.”
And finally Dr. Blumenthal stated, “we want to make sure it is possible for patients to have maximal control over PHI.” He also referred to the Consumer Choices Technology Hearing last week, which demonstrated consent tools that enable patients to control the use and disclosure of their health information from EHRs and for HIE.
Hopefully the NPRM actually gives Americans the control over access to personal information Secretary Sebelius said the Administration is committed to. We are analyzing the 234 page Notice of Proposed Rulemaking (NPRM), and will post our comments on the NPRM as soon as we can.
Below see the Press Conference announcing the Proposed Rule.