Patient Privacy Rights Wants You to Know How Health Data Is Used

Lora Bentley spoke with Ashley Katz, the executive director for Patient Privacy Rights, a national non-profit consumer health privacy watchdog, just before the organization released its privacy report cards for five personal health record systems that are available for consumer use. The goal, she says, is to inform the public how the data is being used, as well as give regulators a tool with which to determine how best to regulate the emerging market for PHRs.

Bentley: Is that how the PHR Report Card project came about?
Katz: It’s actually a specific grant-funded initiative. The Rose Foundation has a consumer and privacy fund. Part of the deliverables for our grant included putting out the PHR Report card. There were a couple of reasons for why we wanted to do that. One is we think it’s a great way to educate the public, by giving them something tangible and specific.

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